Sooo, here's the latest. Jed got some blood last night and is getting an antibiotic...did I say this before? I get confused as to where i wrote this before, email, FB or here!. Anyway his fever is hanging around 100.4 or so his white count is .1. Since getting more blood his hgb has gone from 7.5 to 8.5...we'll take that. They are on the fence as to more blood or not...I say yes, they say wait. He is still having bone pain and getting morphine every 2 hours. That pain we think is from the drug he got on Tuesday. It should calm down soon..we hope. So we do what we do best....hang out and wait. His white count has to rise and the fever has to be gone and the pain easier to manage, then they will discuss springing us. The thing with Jed is that it could be tomorrow or it could be a week we just never know. That's all for now. I have an Internet connection in the room..thank god. I already read the book I brought so I downloaded a new one! I'm sure I'll need another soon.
Love J & K

Well here we are...back in Hershey Med. He has a fever, needs more blood and is having some pain. So we are in bat cave 7262.he is getting an antibiotic and pain meds and will get blood sometime between now and tomorrow morning. I was feeling bitchy and a little pissed off but across the hall is a girl that is 9, she relapsed the 1st time in the middle of her 1st round of treatment. Since march she has relapsed 2 more times...3 relapses all together. She is due to have a bone marrow transplant on the 29th of this month but now has a vicious form of pneumonia that they are having a hard time treating and they can't get her back into remission to go to transplant. SOOO, I gave myself a little mental shake and repeated the mantra I use here....we are very lucky, there are so many kids so much sicker, Jed will be fine.
Jed WILL be fine, just have to get rid of whatever bug he has and get his white count up to a whole 1. Right now it is .1.
Denise, housekeeper extrodanair, waited for us to get up here before she left for the day. I hope she does not leave this floor before we are finished with treatment! Bubba, another housekeeper was in here talking to Jed about fishing...he is over 6'3", huge guy and when he left he told Jed "if you want anything from downstairs just call me I'll get you whatever you want, I love you guys"!
So in the grand scheme of things just a small bump in the road.
Hate these freakin' bumps though!
Love J & K

..........................shark boy
anchors away...............next to them is a big sign it says "please do not climb on bunks"
..............................



...........
Brownie and ice cream always .............peace out 3d boys
perks ya up!

We did it! we made it to the aquarium! The day started off a little rocky. Jed ended up using a wheel chair for the tour of the aquarium, the walking was just too much. The first thing we did was kinda weird. We saw a 4d immersion movie about the sea. Sounds cool right? Well the concept was, the reality was not! DJ said it the best "they could have made it less rough". It was brutal! This pokey thing came out of the back of your chair and it HURT ( i have a bruise)! Then it randomly misted crappy old stinky water on you and then it shot big puffs of air from under the chair and that make the ribbon things whip around your legs...they stung! Jed got up and sat in his wheel chair. DJ held the map over the water holes and I was sitting sidways trying to avoid all the "immersion". Not the "total" fun they said it would be! The boys had a good time though. After all the fishes, jellies, dolphins and sharks we went to Hard Rock for lunch. Jed had a couple bites of a burger and some brownie sundae (not to mention 2 extra morphine) he perked up and wanted to check out the ships in the harbor....so of course we did. He climbed up and down countless ladders and very steep stairs. I was amazed! We really did have a great day.
He's upstairs now resting. He is having a lot of bone pain...not sure what that is about but we will keep an eye on it. I think it might be the dose of vincristine he got on Tuesday.
Tomorrow he is having school and I need to straighten up and clean a little (very little) :)
Friday he has school again and then we are going over to mom and dad's so I can wash my bike and make it pretty for Saturday....when it rains. No I mean for when I go to Carlisle for biker chick stuff. Dad, Mom and Jed are driving up so they can bring home all my loot! I am kind of excited I SO hope it doesn't turn into some big disaster where they do something weird to my hair and put lots of make-up on me and make me wear fringe and pink leather...nightmare. I guess I'll find out on Saturday. Ok, that's all for now.
Love J & K

Hi, we are home from clinic. He only got 1 chemo drug today because his counts are low, so he got blood instead. He slept through most of it. He should start feeling better soon. Seems a little perkier now! If we can get school rescheduled until Thurs and Fri I am going to try to get the boys,
(Jed and DJ), the the aquarium tomorrow. Jed has been wanting to go for a long time. He doesn't remember his last visit...he was 2! I think going now would be good because he is all fueled up with new blood! So that is the plan...well as much of a plan as I can make! There really is nothing new here. Savannah and I are getting ready to take a walk, I need to do something after sitting and eating little peppermint patties all day!
Gotta go
Love J & K

Jed, Holly and Baby Adam!
Hey. So the end of another nice weekend. This summer is going fast. Friday after Jed had school we picked up DJ and went swimming. The boys had a blast. They played in the creek and then played in the pool..giggling all day! Friday night Jed stayed with my parents while I rode with Danny to Gettysburg to check out the bike stuff. Saturday Jed opted to go back to my parents because he didn't feel like riding. Dan and I rode back up to Gettysburg to basically do the same stuff we did the night before....look at stuff and look at bikes and look at all the weird people! Jed was thrilled because when I dropped him at mom's Livi-Mac was there. They both stayed for the day and both napped through the afternoon!! Today was a wash. I took 2 benadryl last night, because I have had this weird itchy rash on my legs for 2 weeks, so I had a benadrly hang over all day. My kids take the stuff so often that it doesn't bother them at all! I could have slept all day. I managed to go the the grocery store..that's about it. Jed had a headache when I woke him at 9 so he slept all day. He was awake enough to talk to DJ for a minute than he went right back to sleep. He came down for dinner, turkey burgers and corn. He ate a half of a burger and 2 pieces of corn and now he just headed right back up. The headache thing is weird. He rarely gets them and he has not had a spinal tap in many weeks. He looks kinda pale. I'm sure his counts have taken a dive since Tuesday. I will be surprised if he gets all his chemo on Tuesday. I want to take the boys to the aquarium soon but Jed has to be able to do all the walking. I guess we'll see.
Oh, I don't know if I mentioned or not but when we were at clinic on Tuesday nurse Holly came in with her new baby Adam. He is so cute, like a tiny little man. Jed called him Benjamen Buttons. Oh god, thank goodness Holly loves him, she can over look his lack of tact! She sat with us in the infusion room and fed the baby while Jed finished his chemo...it was a great diversion! It was so nice to see them. Holly won't be back until September now because baby Adam needs some surgery. The little bones in his head are fused together so they are going to, I don't know loosen them up or open them or something. It just sounded terrifying but supposedly it is not an uncommon event. We hope for a smooth and quick recovery.
Well, now I think I'm finished. Savannah and Kourt are hanging out in the kitchen. Just like when they were in elementary school! Kourt lived a block or so down the street then. She moved to a sub-division for a few years and now her mom bought a house across the ally from me. The girls say we are "butt neighbors"..nice. They are spending a lot of time together right now. Kourtney leaves in the fall for college, she is going somewhere near Pittsburg.
I need to get on my treadmill but the benadryl seems to still be making me slow, good excuse.
Gotta Go, love J & K

Hi All. Things are calm right now after Jed threw a fit that his over easy eggs were folded too much & we were out of bread. I toasted a potato sandwich roll, it got too dark, it was the last one...of course. Then I was going to toast a potato hot dog roll, same maker, same bread just a different shape.....OH NO..they taste different. When I said they did not I got the whole " well they do to me because I am on chemo and you don't understand" . He chose a whole wheat roll...I didn't mention to him that was healthier anyway!!! He was flicking his eggs because he said the yoke was lost and he didn't know what kind of over easy eggs these were. He managed to flick yoke and egg all over the kitchen...dog was thrilled. I love starting the day in peace and harmony.
He is having school and then we are going to pick up D and hit the pool for a short time. Danny wants to ride to Gettysburg tonight, bike weekend is going on there. I don't know if Jed will want to go or not..we'll see. Savannah is in Mifflintown helping her Aunt Min get back on her feet after some surgery. Dakota is healing well from his ATV accident but Savannah will do stuff that a 15 yr old boy prob would not!
Oh, the reason for this post...if anyone is interested there is a four mile walk September 20th for the Four Diamonds Fund
Here's the link if you want to register on line...it will be at Hershey Med Center:
http://www.pennstatehershey.org/web/fourdiamonds/home/giving/fourdiamondswalk
I will remind everyone of it as we get closer!!!!
Gotta go, school is almost over...amazing how he acts so normal with the teacher...bet he wouldn't flick her eggs all over the kitchen.
Love J & K

Hi, well after a not so great night Jed slept until after 2pm today. He woke up and seems to be feeling better. He has been scootering and hanging around. He took another nap but now is up again. He ate some pizza and a piece of corn. Now he is bugging his sister by just sitting too close! Oh love to her her yell.
So after the drama of yesterday eve this eve seems calm....so far! I know better than to get used to it. We have postponed our swimming with DJ until Friday.
That's all for now. I will keep you posted.
Love Jed and Kristin

Just a quick update. The day was fine, he got his chemo ate his Wendy's burger on the way home, picked out his steak at the store, helped shuck his corn when we got home. He scootered a little, called DJ to invite him to swim tomorrow, ate his steak & corn & rolls and then got sick. So much for this chemo taking a day or so to kick in. Hope it doesn't last long. He is sleeping, has been since 7pm. The closer we get to the end of this the harder it is. I am SOOOO freakin' tired of this crap so I can't even imagine how tired Jed is. He had just started to feel pretty good and now it's back to the crap. Oh well, we will be finished soon. By Thanksgiving...fingers crossed.
Gotta go, have to wake him up to give him meds.....oh fun
Love J & K

Hey. All is well here. Great weekend so far. Hope everyone else is having a fun 4th. On Friday Jed went to see Transformers with his little brother and dad. Then Friday evening he ad I walked up to watch the Red Lion fireworks. Of course we can't do anything without a little issue. Where we stopped to watch the show Jed made contact with a gift left by someones dog. Why are people just too lazy to clean up after their dog? Anyway we watched most of the the fireworks and then headed home where Jed went right to the bathtub! Yesterday we spent the whole day at a camp ground outside of Gettysburg with the Althoff family. Hayley is the girl that turned her birthday party into a fundraiser for The Four Diamonds. We had fun at their campsite. Jed loved it. we ate good food and he played in the creek and played kickball, on the playground and made gooey bananas and smores. He had a busy day! It was so nice of them to invite us up and entertain and feed us! Jed wants to go rent a place up there for a weekend and take DJ. They have cabins (with no water) for $50 a night or you can rent an RV there for $95 a nite. I have a tent but I don't think I could do it! Well, maybe...no I couldn't! We'll see. Anyway we had a great time and Jed REALLY had a great time! Today I think is just a hang out kinda day. Jed was awake earlier but went back to bed...he is worn out!! Danny spent yesterday in Altoona visiting friends and Savannah is in Atlantic City with Kyle and his family. I hope it gets warmer this week I want to go hang at Grace's pool! Tomorrow my cousin,Suzy, aunt Paula and cousins kid, Kaitlyn, are coming to see my Gram so we are going over to hang out and eat some lunch. Can't wait to see them. I want to go stay at my uncle and aunt's place on Chincoteague island sometime soon. But I have to work almost 3 weeks in August so I doubt if we will get to go. Guess that's it. I put some pics of up our "day at Camp" on this post. Tuesday starts 4 weeks of all day chemo..yipee. Oh well almost over....I hope.



creek fun.................................... kickball......................... hangin out




smores..........................new buddie peko.........after not even 10 mins on the rode home!!!


Love J & K

Our front Porch

Flowers trimmed from my garden
Grace and Jace blowing out Grace's candles
Jed celebrating Grace's birthday
Jed and the neighbor kids, hangin on the porch