Hershey med, bat cave #7255. Admit for Iv antibiotics whoohoo!

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Looks like we are making a run to Hershey AGAIN. He had a fever last night of 101. I gave him tylenol and sent him to bed. Emailed clinic to tell them what's up and Denise called this morning to say they want to do a blood culture on him..just in case.
needless to say Jed is not thrilled.
I will keep you all posted,
Love J & K

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Jed can see now!!!!

Danny telling his travel stories


danny and his baby
Jed 1st day of 6th grade!!

Livi-Mac..kissin the fishes

K-rob, Fred and Jed hanging out!

Hey ya'll. We had a great time at Bob and Sharon's cook-out yesterday. The food...as always was awesome. K-Rob (Katie) came to visit from Pittsburgh. She looks fantastic and is as great as ever (nothing new on that front)! It was so nice of her to take the time to come hang out here and visit. danny and I rode for awhile yesterday and Jed went to his little sister's birthday party before we all headed to the Shultz's for food! "The Mac" was there...being her very cool self. She ran all over the yard saying "go, go, go, go" and she was so thrilled when Jed walked in. It was a very nice day...made even nicer by Adam's rockin' bushwhackers. Yum, too bad I was driving...well maybe that was a good thing, kept me in line!
Danny hurt his back so he didn't stay too long. He came home to rest it.
We took K-Rob to breakfast this morning before she headed home. All in all it was a great weekend. Back to school for Jed tomorrow...Savannah too! We head to Hershey in the afternoon for counts. Jed's birthday is fast approaching..the big 12!!! oh my. Where does the time go? I guess that's all for now.
Love Jed and Kristin

Hey. Well Jed didn't make it to school on Friday either. He was with my Dad all day though and he spent the day sleeping in the truck while he ran errands! He slept yesterday until 2:30pm and he went to bed before midnight last night. He is headed to his little sister's birthday party this afternoon and we have a cook out to go to at 4pm. my brother's in-laws invited us and our "extras"! K-Rob is headed down from Pittsburgh to stay until tomorrow. It has been awhile since we have seen her....Feb. maybe??!! Wow, didn't realize it had been that long.
Back to school for Jed on Tuesday. He has counts but we will leave after he has his half day of school. We were supposed to have another eye appt again but they never called to tell us what time. I think Jed's teacher is coming Tuesday eve to catch Jed up...already!
His glasses should be ready by Tuesday also.
I guess that's it for now. I have to go wake the king so he can be ready for the birthday party. Danny and I are taking a ride for a couple of hours.
It is so very sad that summer is ending. BUT that also means Jed is almost finished with chemo!!!! I am having a hard time believing it. Our thoughts are with those that are not finished or are starting over. Our love and best wishes to them and also to the families of the kids that are no longer with us. The list of those seems to grow everyday...it is astonishing how many we are losing to this disease. A cure is in desperate need.
Gotta go,
Love J & K

Hi all. No school for Jed today. He managed to wipe himself out yesterday. He also has a sore knee where he fell on it a few days ago. He slept until almost 3pm today. I hope he is back to school tomorrow..half day. Other than that nothing else new here.
Love J & K

Why is it that cancer just does not want anyone to have even one cancer free day? I just found out a boy diagnosed when Jed relapsed lost his fight last Thurs. He was fine, doing great...now he is gone. 2 other kids we know are being "made comfortable" WTF...these are children. I just don't get it. Now I find out another boy we know through our listserv for parents of kids with relapsed ALL has relapsed...again. This very brave 13 yr old was diagnosed at the age of 3...off treatment and doing very well for FIVE years...FIVE..he relapsed in Nov of 2007 and now while in maintenance he relasped again. There are no words to describe how much this sucks and is so F'n unfair.
www.carepages.com/carepages/thomasmolina

Big Day today, Jed stayed at school ALL day! 1st time since Jan of 2007!!!!! He has been sleeping since 5pm!!! He joined chorus today...it was in the afternoon so that's why he stuck it out! He said he is staying tomorrow too...hhhmmmm, we'll see!
Thanks for all the well wishes.
Love J & K

Home from a LONG day! Jed did great in school. Hop bought us lunch with Gracie and then we headed to Hershey. His white count is the same as last week .6. Will get the rest of counts tomorrow. As of now we are still holding all chemo. His eye appt was...a waste of time, they have told us NOTHING about why or is it permanent, is it from chemo, will it fix itself, will it keep getting worse ,etc;;; we go back again next week so they can look at his eyes AGAIN, the Dr said he wants to see if there is a difference from one week to the next....um ok. His glasses should be in before next Thursday. I hope that helps at school. He said he sits in the back, I told him to ask to be moved to the front but he said the board the has the assignments on it is right next to him, he is not sure which one is more important to be able to see! Poor guy. I'll wait a couple of days to see how he handles it before I jump in. He is back to school tomorrow for another half day. Hop will take him and pick him up.
Gotta go, sleepy!
Love Jed and Kristin
Today was a good day. long but good!

FW:

I was worried about how kids would receive him..he was barely out of the car n kids were high fiven' him!