Gram and Lois

Hi. So the weekend is almost over..:( the weather was wonderful. Yesterday we had dinner at my parents, my Gram's sister is here from Florida. Today Jed went to his Dad's for a few hours and Danny and I rode. (wonderful..soooo nice, we even rode in Maryland for about 20 mins with no helmets before I caught up with Dan and told him where we were!) Jed is feeling the effects of the steroids. He has a lot of anxiety, he is sad and cries easily and is very tired. He also likes to argue...very picky about details and insistent on correcting anything that he perceives as incorrect! Right now he is reading his Thomas Edison book for school. He is spending more time worrying about the fact that he can't get it read quickly enough than he is actually reading. Poor guy. He had fun seeing his brother and sister but they had friends over he wasn't too thrilled with! We just got back from dinner, Gram's sister Lois took us out to eat. It was great to see her and very good for both of them to be together. Lois is 82 or 83 and gram is 85, they are such glamour girls! They were the talk of the town when they would go out to the USO dances! Just to illustrate how picky they are about their looks, the other night Lois was ready to step into the shower and the fire alarm in Gram's building went off. They both put on make-up before they left the apartment!!! So funny.

Anyway Jed is now resting and reading. I am trying to work up to a little treadmill work...after all I have eaten in the last 2 days I should walk until tomorrow!

Today is Uncle Barry's Birthday....Happy Birthday Bar....he is married to the kids Aunt Mindy.

Tomorrow...I don't think we have anything planned for except school at 4pm. I have to call and schedule a "date day" for Danny and I....date day consists of separate psychologist's appointments and then out for subs!!!! Yup we lead a rockin' exciting life!!!!! but we are mentally stable....I guess that's up for debate!

Tuesday we just have blood counts but Jed is stressing about it already. He made it through his 1st week without Holly but all of a sudden today he started to cry and said " I just don't think I can do it again"...I told him..well dude, she just gave birth on Thursday so you are going to have to suck it up and deal. He will be fine but the steroids make him worry about everything. This morning was his last dose so hopefully they will be out of his system by the end of the week. i think that is it. Danny just finished mowing the lawn....looks wonderful. I have to go water the veggie then I guess it's to the treadmill for me...uugghh

Love Jed and Kristin

Hi, just a quick note for right now...
HOLLY, I know your busy just having a baby on Thursday and all but HEY is it a girl or a boy????? WE NEED TO KNOW!!!!!! Hope all is well, we are thinking of you...we want pics!
Love J & K

Hey, Jed is feeling better. He had school yesterday eve and today he went with Savannah to see pappaw for his birthday. Their Aunt Mindy came down so they got to see her too. Today we also met Haley, she is the classmate of Jed's that is celebrating her birthday by having a fundraiser for the Four Diamonds Fund. All the money she raises will go to the Fund in honor of Jed. WOW! Very nice child, her mother and sister, Ashlyn, are very nice also. The party is June 5th between 5:30 and 8:30 at Windsor Wonderland. Anyone that can stop by I would really appreciate it. I want her to know that Jed's friends and family are appreciative of what she is doing. She has raised over $1500.00. That is amazing ...she is only in the 5th grade! So if you have a spare minute PLEASE stop by Windsor Wonderland on June 5th between 5:30 and 8:30.
Tomorrow Gram's sister Lois will be here from Florida. I have been cleaning all day and it looks like I did nothing! I made the HUGE mistake of looking behind the fridge and stove this morning.....there was enough dog hair back there to make a litter of puppies.....yuck. So the kitchen is pretty clean but that's all I got finished!
That's all for now. Jed is resting, his face is kinda puffy from the steroids and he is being a tad intense but so far it is tolerable!
Love Jed and Kristin

Hi again. Just wanted to let you know that around 4pm Jed wandered down stairs in search of food. When he found out that there was a little carnival at the high school and they would have funnel cake he was on a mission! So we went to the carnival, listened to Savannah and Karli sing and Jed ate a funnel cake, fries and a blue sno cone. I asked him how his head felt, he said it still hurt but he weighed the headache and the funnel cake and the cake won!. He ate a sloppy joe and more fries when we got home. Steroids must be kicking in. So anyway the point of this was to say that Jed is feeling better and starting to eat.
Gotta go,
Love Jed and Kristin

Danny and the Mac!



Jed, Livi-Mac and Dan

hey. Jed is suffering from a lovely spinal headache. He has only really had one severe one of these before, a few minor ones but this one seems to be on the more severe side. He starts to feel ok and gets up to do stuff and then of course as soon as he is not flat on his back the headache returns with a vengeance. Hopefully it will go away today. Savannah brought him some coke last night and that supposedly helps...I guess we just wait and see. He did well yesterday considering that "his" Holly was not there! Joanne took care of him. As of yesterday he has 20 weeks of chemo left...I might have mentioned that before. He also should only have 1 more spinal tap! I am not telling him any of this just in case something changes. I am slightly stressed that he is not on chemo right now but I have to trust that they know what they are doing. He should be able to start next week.



2 doses of steroids in, waiting to see if there is a reaction. Sometimes it is horrible, very OCD, very emotional other times he doesn't seem effected except he is hungry...and other times it all does not even start until the 5 days are over! It is a kind of hold your breath thing!



This weather is sucky...too cold. That is what's going on as of now. I had to call the teacher and postpone school until his headache is gone,...hate to do that!



Love Jed and Kristin

Hi All. Today was spinal tap day, it went well. He has a little bit of a headache and is saying he feels nauseous but he ate some mashed potatoes and a half a sloppy joe. He lost about 3 lbs since last week but steroids start tonight...yuck His counts are not high enough to start the other chemo meds yet. We go back next week just for counts. If he is high enough he will start them then. Hope everyone had a great holiday weekend. Ours was nice. Just hanging out, we planted flowers, had a cook out at my parents, rode my bike, had mini-thon, enjoyed the awesome weather,,,,what happened to today? It is COLD!
Here is a link to a little video that was made of mini-THON..Savannah is not in it! http://www.youtube.com/watch?v=9F4YCaUieos Thanks again to all that helped!
So I think that's it for now. Gotta hit the treadmill soon...trying to talk myself into it!
Love Jed and Kristin

Mini-THON has ended. The total was over $27,000.00! The best yet. To thank Savannah for starting this and running it for 3 yrs every mini-THON from here on, that Red Lion has, $1,000.00 of the total will be donated in Savannah's name. Very cool.
Thank you SO VERY much to all of you that helped make her last Mini-THON such a huge success. We couldn't do it without you. Savannah also raised more money than any other student..over $2,ooo.oo. THANK YOU !!
Jed had a blast we were there when it started last might and didn't get home until almost midnight. His legs were so sore from running around that he had a hard time getting out of the car but he got up again this morning at 5am so he could go with me the see the total! Mom, Dad, Gram, Grace & Jim came to hang with Jed and Danny and me last night for awhile. Mom came back this morning for the total and to see Savannah get her honor and Adam stopped by this morning on his way to work.
So now Savannah is headed to Penn State York in the fall, they have been consistently behind all the other PSU satellite campus when it comes to raising $ for THON..well watch out York campus Savannah is coming your way!!!! The Four Diamonds Fund people are so happy she is spending a year at this campus they want her to whip them into shape!
It is so beautiful out I hate to go back to bed but I might need a nap. Jed is asleep again already!!!
Thank you once again to everyone....I can't say it enough.
Love Jed and Kristin

Hi all. Jed is feeling better. He was up by 1pm. He just ate some pancakes and is now playing playstation with Danny. So thank goodness for that!
Ok now here's the latest drama, Savannah's mini-thon is Friday. She and her teacher advisors reserved the school last year. At the time the new gym was not finished so when they wrote the request they stated all the places in the school they needed and also wrote that they wanted all new construction that would be finished. many months later the girls basketball coach (moron) wanted the school for a tournament that same weekend, starting Friday (mini-thon). The request was rejected because minithon already had the school reserved. They then resubmitted the request with the wording specifically saying they wanted the NEW gym. When it went to the school board a lady in the ed center ( nancy orwig) made sure that the school board thought minithon only needed the old gym and the request was passed. This group was very angry last year when minithon took the weekend they wanted for the tournament and they fought and complained right till the end. Now this year they managed to cheat and lie themselves into getting what they wanted. Minithon will still happen but they are not allowed to use the "new" gym because you know a basketball tournament is so much more important than raising money for pediatric cancer. oh, did I mention the woman in the ed center, Nancy Orwig, is involved in the basketball tournament and her job is to write the requests to the school board, so she knew exactly how to word the request to get it passed. Karma is a bitch lady, you better watch out. The principal, a Mini-THON supporter, is unaware right now that all this crap is happening...he will tomorrow! This is such typical Red Lion bull s#$%. Sports coaches and old cronies cheat and lie and get what they want. There are people that work for this district that should have been fired years ago. Sexual harassment issues, sleeping with students, complete apathy towards teaching, incompetence, cheating...etc.
anyway, there will be MANY letters written to the school board after Friday. But if Red Lion lives up to it's typical way of doing business the letters will make no difference.
So that is the drama for today.
Jed does feel better...I guess that really is all that matters.
Love Jed and Kristin

Hey. Jed is still sleeping. He had a tough night. His stomach was very upset and the vincristine seemed to really inflame his pain. He just cried. I finally got some extra morphine in him. After that and some other good meds started working he calmed down a little. I gave him another double dose of morphine a couple of hours later and he fell asleep. I am not waking him! I told him his meds and drink were there about noon but I am not forcing him to get up. That would be pointless.
My neighbors are putting on a new porch and the old guy doing the work smokes continuously. I am such a horrible reformed smoker, the smell makes me nauseous. Now he has a helper, he isn't smoking but they are arguing...entertaining! I want to bring down my antique crib and set it up on the porch but...guess I'll wait till they leave. I was painting a wicker table for the front porch out on the deck. I dropped the can of pink paint on my blue deck...good thing the deck needs to be painted again anyway! Yeah I know, antique crib on the porch, pink table, blue deck, sounds like a nut house....it is!
I gues that's it. Hope Jed bounces back fast.
Love J & K

Hi we are home for a long day at clinic. Jed is eating subway and resting. He slept most of the day.best way to do it!!!!

Ok, I need you all to PLEASE go to this website and vote for me!!!!!
http://www.garage-girls.com/poll/makeover.php

Thanks so much!!!!
Love J & K