This is a picture of Jed, Hayley, Ashlyn and Olivia in the playroom at Hershey Med. when they came to visit Saturday. They had a good time, and it really helped Jed.
Right now Jed is at Jase's birthday dinner with Jim and Grace. He slept until about 11. He was not a happy camper when he woke up but the grumpies seemed to fade away as he worked on his homework. He has school tomorrow morning.
Just another day here.
My tomatoes and peppers are really growing. I used some today a sauce....YUmmy...yay me! I am not known for my cooking!
Savannah and I just got back from a walk. On Monday I took Danny and the dog on my walk. Dan was bound and determined to keep up and look macho. The dog was dragging when we got home. Dan did well but this morning he made a comment about his legs being really stiff!!!
Jed just walked in...talking up a storm..he brought me a chocolate peanut butter cupcake...yum. I ate it in 2 seconds! Thanks Megan.
I guess that's all for now. I don't have anything witty to say...oh well.
Love J & K

Hey all. We are home. Jed did well. I seem to have a problem when I try to post from my phone...oh well. He slept through his chemo, that's about the best way to do it I guess. I just have to wake him up to pee! He's like a camel though, he can get bags of fluid and still not have to go. Weird kid. This was our last all day chemo in this round. Next week is a spinal tap. We are getting down to the last 10 week round....I don't want to talk about that though. I am afraid I will jinx it. I wish we could just keep giving him a little tiny bit of chemo...forever. Finishing treatment is the scariest part..at least for me! I know Jed does not feel that way.
Danny was to go to Colorado in August for a rally to work. When he got picked they said he had to give them an answer the next day. I went on line and used my FF miles to book a ticket for me to join him 3 days out of the week he would be there. Now work has decided that because that is a week our plant is shut down it would not be fair for Danny to be working.............nice of them to decide that after making a big deal about needing an answer the next day. So now I have to pay $150. redeposit my miles. Oh well. I think we might all go stay at my uncles place on chincateague island. Maybe. Of course to add a little bit more stress and need for planning to our lives, the day the layover starts is the day I am to go back to work for 2 weeks. The layoff is 2 weeks. Yup really, all the time I am off and when I have to return they just happen to schedule; a 2week shut down! I am trying to find out when I am to go back now!
Sarah from Garage Girls sent me this link to the video from the biker makeover. It was such a fun day and these girls are so WAY cool.
http://www.garage-girls.com/blog/machine/index.php
Dominos is here....I cooked all day....:)
I guess that's all the news from our very exciting lives!
Thanks for all the good thoughts
Love Jed and Kristin

I was saying, 45 more mins of chemo then home..yay love j & k

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Carol, sorry I didn't bring the books up too much drama & not enough time this morning.sorry. Jed is sleeping, 45 mins

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I wanted to say thanks to everyone that came up to see us last week. The Althoff gang came on Saturday and really helped us kill that dead time between them telling us we can leave and them actually giving us our papers! Jed always has a great time with them.
Today is a hang out day...tomorrow back to Hershey for chemo.
Love J & K

Hey. Jed is feeling good. He went to his little brother's birthday party today for a few hours. He is still a little worn out but all in all he is light years better than a few days ago. The speed with which we go from high to low to high...good god. I can handle the lack of sleep but all the up and downs are what is so exhausting. Danny and I took a short motorcycle ride and ate some Mexican food. I feel better now but it is time for bed. Thanks again for all the support and happy thoughts.
Love Jed and Kristin

We are home. Thanks for all the good vibes sent our way. That gets us through. Love J & K

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Hey all. We should be out of here today!!!! I'll let ya'll know what happens. He had them stop his pca and change his meds to oral last night. He will get some more antibiotics before we leave today but should be sleeping in our own beds tonight!!
Carol, SO glad you were our nurse a couple of times!! It has been a long time. When is your fundraising yard sale? I want to get these books to you. Let me know.
Ok, gotta pack....cause we are gonna roll..today...yay
Love J & K

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King Jed..confiscated my laptop.

Howdy folks. SOOO, here's the news....there is no bone involvement (my big worry), no bad teeth, no abscess. It is just a small soft tissue infection that is taking a long time to heal because his counts were so low. Big sigh. I could almost pass out from relief. The plan now is, they will check his counts in the morn (they didn't do them today), and he is working on weaning himself off the iv pain meds. If all looks good tomorrow, the swelling on his jaw is down and the pain is controlled we can get out on Saturday!!! YAY! Thanks for all the well wishes and good vibes...always works.
I'll let ya'll know what's happening.
Love Jed and Kristin
ok an addendum to this post: the attending Dr just came in. He said the same thing the resident told me but when I said I was so relieved it was not a relapse he came over to quietly talk to me while his sidekick Dr. talked to Jed to distract him. The dr said to me " anything like this can be a relapse that is not detectable yet, you might want to mention to Jed that that is always a concern but as of now that's not what's happening". So now, I still feel relieved but no as euphoric. They are checking his counts now, if he has enough neutraphils they are going to give him a sronger antibiotic that is more narrow to really get rid of whatever infection is in there. His thought is that the broad spectrum ones he is on right now are just keeping the infection in check but not really getting rid of it. so, still YAY but also a little of oh F'...