Hi. Back from clinic. He has a white count of .1 so no all day chemo. He got his vincristine but no cytoxin. Needless to say he was not upset. We did our usual McDonald's stop and now he is napping.
One more chemo left!! I can't stop saying that but I am also scared to say it. The thought of starting this over again is enough to make me want to throw up.
We have managed to keep the party a secret ..so far!!!
I have not heard one word from anyone at school about coming to Jed's party except his teacher from last year, Diane and his new one, Ben. Not one parent has emailed me to say they were coming yet. Oh well DJ & the Dietz clan will be there & the Althoff's too!!! Maybe it won't be a huge party but it will be fun. Cross your fingers for halfway good weather! chilly I can handle just no rain Please!
Gotta go,
Love Jed and Kristin

Hey Ya'll. Home from a great Birthday dinner at Chili's. The manager there even gave Jed a bag of gifts! Then we all went to mommo's and Hop's for cake and gifties. It was fun and I think Jed had a great birthday. DJ was along...we figured he hadn't eaten with us since yesterday so he might be hungry. He said spending the weekend with us was like a free buffet! What a nut. we do like to eat though. Tiersa came up and brought 'the mac". Jed would have been very disappointed if she had not come. He so loves that funny kid.
Chemo tomorrow...if his counts are high enough. He is having weird stomach pains on and off. I guess that's all for now. I think I fixed the link for the VA pics and I will also put up the pics from tonight. I am REALLY tired! The wild weekend is catching up with me! DJ is not a roller coaster lover so Danny and I had to ride them. I love them but I get sick...very sick, very quickly. Danny is terrified of them! It was interesting. I took 2 Dramamine and 2 zofran and still had to really work at not throwing up. I was cussing myself for not springing for the extra 120 dollars and having Savannah and Kyle come down for the day....Kyle rides everything. Oh well, maybe next time. I survived.
Only 2 more weeks of chemo left...honest? can't really believe it.
Gotta go to bed.
Love Jed and Kristin

Hi I'm putting the link for the VA pics on the right. Today is Jed's birthday..he is still in bed and we are hoping he is well enough to go to Chili's tonight.
Love J & K

HOME!!!! I will tell all about our trip to Busch Gardens and Jamestown tomorrow..with pics!
of course Jed slept the whole way home and he is "so NOT tired in the LEAST"..oh yipee
Love J & K

Hi Ya'll, So we are here in Virginia. We ate...of course ..we do that a lot and then we went to the Yankee Candle Store. The boys did every thing there you could. They dipped candles, they made wax hands and they made their own jar candles. Now we are watching Transformers 2, Jed is trying to explain to Danny what is happening. He is a child of the 60s so he never watched transformers..he is very confused! Doesn't understand who is good and who is bad! Jed is SO rude, acting like Danny should understand what is going on! DJ of course is quiet and watching!
I am waiting for the PSU game updates on facebook!
I made a wax hand too by the way..yay me
Gotta go
Love J & K

Hey. Jed made it to school today. His backpack is SOOOO heavy! I am constantly rubbing
"blue stuff" on his back and I am sure it is because he puts that thing on his back. I told him to drag it!! He is way too cool.
Harley open house is this weekend. Tonight is the parade. Last year at this time we were getting ready to lead it! This year I am still waiting to see if Jed is even going to go watch. He is sleeping. I will wake him up at 4pm. If he does not want to go he will stay with mommo and hop. Jed is very tired. He said he hyper extended his knee 3 times today. That of course puts me on edge as that was one of his relapse symptoms. I just kind of blew it off and told him he was tired, and that probably is exactly what the problem is but of course inside I want to throw up. I also wanted to yell at him "no you didn't" when he told me about his knee. But I acted like it was no big deal...and I am sure it's not. Only a big deal in my head! Like how I make this "all about me"!!??
Anyway. Jed did his first real "project" for school. His subject was the Aztecs. Instead of just gluing pictures on a piece of tag board he wrote a report. He put it in a folder, put a picture on the front and put some pictures in the report. I read it, he did a great job. It was pretty cool to watch him read the info he found on them..he actually seemed to enjoy it!
I guess that's it for now. I don't know if Jed is going to the parade tonight or not. Guess we will find out. We are leaving tomorrow around 11, heading to Va. Then going to Busch Gardens on Sunday.
Love Jed and Kristin

Wet head Jed and Jared at the Four Diamonds Walk..


Skinny butts Jed and Eli

Jed slept until almost 2 pm yesterday! He said to wake him at 10 today..not sure why! Mr. Phillips will be here around 4pm to bring Jed up to date. He has a report to write...maybe that's why he wants to get up. We leave for Busch Gardens on Saturday. Should be a fun weekend.
I just took a picture of a HUGE spider on my deck and now I can't stop itching..feels like it's crawling on me...but I know it's still on the deck!!! yuck. Seems to be an abnormal number of spiders this year. yipee!
Love J & K

The king has awakened. Wants pizza..wow what a shocker! The party is growing...slowly but surely! Even the manager from Jed's favorite restaurant is coming! (Chili's..as if you didn't know)

Go to this website
www.xbox.childrensmiraclenetwork.org
and vote for Penn State Hershey Medical Center Children's Hospital!!
We have slipped to 7th..
VOTE!!!

Hi. Home from clinic. His counts were actually higher this week than they were last week. Weird. He slept through all his chemo..as usual. Better than puking through it all. Jed ordered the Dominos he wanted when we walked in the door and then went to bed....repeat of last week! we saw Eli, he came in for his chemo as we were leaving about 3-3:30. he looks Great! Hope his 9 months of chemo go smoothly and gets rid of this crap once and for all. I mailed invitations to the 7th floor and dropped off a bunch at clinic today for everyone. I REALLY hope lots of people show up. I also dropped invitations at school and his teacher was going to hand them out today while Jed was not there. So I guess we shall see!
We leave on Saturday for Busch Gardens for the weekend. Taking DJ of course! This is Jed's B-day gift! Tuesday eve we are going to ...yup, you guessed it.... Chili's for his official b-day dinner!
Only 2 chemos left....really??? I still am not believing it!
Gotta go
Love J & K