Mini THON

My children are going to hate me for posting this!

Hey! THANK YOU to everyone that donated to mini-THON. Not only did Savannah get the community service award at her school, they raised over $25,000.00! Fantastic job. Thanks again to all of you for the help and support. So that's what we did Friday night until about 11:30. I went back at 6am Saturday morning to watch them do the total. They all did a great job. Saturday, Jed slept most of the day & then he and I went to see Indiana Jones.. it was pretty good! Sunday Jed spent the day at Grace and Jim's, Danny and I rode all day. Savannah had to work :( . Monday I painted the deck. Jed went to nana's to ride despite a sore throat. Today was clinic day. A spinal tap was scheduled but because of his sore throat & runny nose they didn't want to sedate him. Now that is postponed until next week. He got his other chemo medicine and now we are home. He was so hungry, but by the time we got to McDonald's he was throwing up. He ordered food anyway but never ate it. He's sleeping in my bed now. He feels yucky. That's about all we did here. I need a nap, big headache! Gotta go.
Love J & K

Ok, so I had to tell you all...Mommo, Hop, Grace and Jim came over for the "ice cream testing"! It is very good....& VERY sweet. I can tell Dan and Jed made it, I think there is a little extra sugar! Anyway, it was nice of them all to come over, Hop even tried out the Wii fit!
Love K&J

Hey.So yesterday he was pretty sick when he woke up and it took awhile for him to be able to hold his medicine down but after he that got in his system he slept some more and felt much better. He woke up again about 2:30 PM and started surfin' the web looking for a Wii Fit. No one had any of course, even all the pre-orders had be closed for weeks. He got the phone numbers of all the local game stores and had me call. Holy moly the last place on the list still had a couple. We called Savannah as she was headed home from school, she picked him up and they went right down and got his Wii Fit! Thank Goodness! He had been saving for this. He knew it was coming out. He gets so focused on stuff that I was not looking forward to him obsessing about this thing. What a relief. It's really cool. He has been jogging (a lot) and doing the skiing high jump, slalom, hoola hooping, all kids of stuff. He even tried out the yoga...he was not impressed with yoga! I thought I was awesome at hoola hooping until Savannah came down and kicked my butt! Oh well.
Today he got up and jogged (on the wii)!!!! Then he spent the day with Grace and Jase. Now he and Danny are making ice cream with the new ice cream maker Uncle Adam got him! So as you can tell he is feeling good, even after all the chemo on Tuesday. The hope is for him to feel this good tomorrow night. Mini-THON starts at 7pm. I was with Savannah this evening picking up donated stuff. She has 2 trash bags filled with bagels! Cookies too! YUM. Anyway, everyone is getting excited. The big news is.. tomorrow at Savannah's school they are having the senior awards assembly. Savannah is the only junior getting an award for the senior assembly! She and her co-chair Seth won the community service award for Mini-THON!!!!!!!!!! YEA Savannah & Seth!
Ok, that's all the news for now I think. I think there was other stuff but I can't remember! Oh well. I want to go taste the ice cream before the boys eat it all! Love Jed and Kristin

Hi, we are home from clinic. We got there at 8:15 and left at 5:30. LONG day! Jed did well, he started to freak out a little but he settled down and slept for awhile. That's about all. we are tired!
Love Jed and Kristin

yuck

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the newest loose tooth

Jed

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Cool man Jed waiting for discharge

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Jed was trying out all the positions of his bed!

Jed

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Jed doing spin art in the playroom.

Hi Ho we are home.... yeeeaaa! This was the fastest chemo admit we have ever had! He went into this chemo with awesome counts and feeling great, I think that made a huge difference. He only threw-up 1 time! Amazing. We go back on Tuesday for an all day chemo but for now all is well! Jed is going to go camp in August! Katerina from childlife came in and talked him into it! The fact that she does an outdoor cooking class hooked him! It's from Sunday to Saturday the 1st week in August in Mt Gretna, not too far from here. They have nurses and a doctor at camp. He really got excited, I think it would be great for him to go. I hope he is feeling well when the time comes. So that's all for now. Thanks for the spaghetti mom! YUM
Love Jed and Kristin

Hi. All is calm... he is eating like a pig and has only thrown up once, that's very good! So tonight he starts the recovery drug and then we watch his level, less than .01 is what we are looking for. It would be nice to be home for the weekend but I have learned not to count on that! The plan to redo his bedroom is moving along. Dustin, the design guy, was out today to measure. I don't want to know if he moved anything to get to the walls & what he found if he did! Lots of dust at least! I think it's so cool that Jed has a "design team" doing his room! He still does not know about it. Boy will he be happy! Even if they just painted I'd be thrilled!
Ok gotta go. Danny is taking his usual nap on my bench. He brought Jed a pizza & now he is napping for the return trip home!
I keep ya'll posted. Love Jed and Kristin

Hi. So far so good. His chemo went up at 12:30 am and will finish at 12:00 tonight. He had a brief moment of anxiety but some meds took care of that & he slept all night. We are in the "teen lounge" right now looking for cheat codes...well I'm not but anyway he is beeping & wants to check out the cafeteria so I have to go. Love Jed & Kristin

Hey all. His counts are great so we are in for chemo. Room 7263. As soon as they say he is pre-hydrated enough they will start. He is in a great mood. Almost manic when we got here...weird. He's much calmer now and still in a good mood. I'll let you know what happens when chemo starts. I think we have talked him into going to camp this August! Katrina from child life came in and took a long time explaining everything. By the time she left he was filling out papers! I think what sold him is she teaches an outdoor cooking class for the campers interested! But we will see!
Ok gotta go ...as you know....... back to the bat cave.
Love Jed and Kristin

Happy Birthday Megan!!!!!

Yesterday was a great day. Today is a kick back & relax day. The weather is horrible so I don't want to leave anyway! Jed is still snoozing, he was up until 1:30 am or so. Sometimes he just can't sleep. Tomorrow we go up to Hershey for a few days of chemo, so we will just enjoy being home today!
Talk to you all later.
Love Jed and Kristin

This is Jed's #1 clinic nurse, Holly & her baby Emily at the fairy festival.

Gram & my kids

Savannah & Jed and their Great Gram (they call her "A") for Alyce. Great Grandma didn't appeal to her!!!!
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The Mother's!

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We have been Mothers for between 62 years and 2 weeks!

Happy Mother's Day!

I guess this picture would be Happy Grandmother's Day!

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Hi, 1st Happy Mother's Day to My Mother...the best of the best. :)
Happy Mother's Day to all you other mother's out there too.
Next:I want to thank all our Gamma Phi and Acacia friends for the birthday cards. Savannah and I loved them....THANKS VERY MUCH!!!!! I know everyone is either in the process of leaving or is already gone..enjoy your summer! To those of you leaving for the last time...keep in touch and good luck out there in the world! Dan Alexander...that goes for you too!
Jed got to fish today. He and Mr. Jim caught a couple and then released them. He is pretty tired tonight but still tried to talk me into going to see Speed Racer....um, isn't it almost Mother's Day?! I have no real desire to see Speed Racer.... but..... I'm sure at some point I will, just not tonight! We spent last evening at my parent's. We went there to see the baby while Adam & Tiersa went out for a few hours. I don't know why she woke up when we were there!!!! We were so quiet! She only cried when she was hungry other than that she just stared at us like we were crazy!!!!! My poor mother was trying to get her to sleep when we left. I can't wait until she starts to do stuff. At least she hardly cries, she just squeaks and stares! Wow, nothing like my kids!
That's about all. Tomorrow we are going to my mom's. Yea.. we can play with the baby again!!!
Love Jed and Kristin

Not much new here. Jed is at Grace's. we had breakfast together, went to see Johnny's gardens...very pretty and then Jed went home with Grace to cook a quiche! They took it to Adam and Tiersa & visited the baby. He is waiting for Jim and then will be home. Tomorrow he is going fishing with Jim and while he is gone the design guy is going to look at Jed's room. I am so stressed I think I'm going to throw-up. I am excited that they are doing his room but the fact that someone is going to come look at it is making me freak out. It is so crowded and messy and the rest of my house is dusty, messy etc. BUT... did I clean like crazy today???? No, of course not. I just walked around and looked at all the stuff I need to do! Yesterday I did plant the flower boxes on the front porch. I was hoping for a new front porch at this time but I was afraid if we took it down I would end up spending all summer with no porch. We need the front because when they come to do Jed's room they can't use the back because my dog is insane. Maybe this fall. Then I will probably be without a porch for the whole winter too. We really need to replace it, it is rotting & I want to use plastic so I never have to paint it but I am so afraid when they take it down it will just stay that way...for a very long time! I need to learn how to do all that stuff so I can do it myself. I just don't measure well..I can do all the other stuff I think but measuring is an issue for me, just look at my sewing!
Jed is feeling good and looking great. skinny but not too much. He is getting so tall!
Anyway gotta go the dude is home!
Love Jed and Kristin

Jed's 1st tomato!!!!!

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Look at the size of that baby!!!

Jed's Spa treatment for his head!

Don't tell him I posted this, he will not be happy! His head was peeling for some weird reason so he covered it in lotion!
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Hey, here are some pictures from today. The 4 of us at Red Lobster..Savannah's pick for her Birthday dinner, at home with her cake & the rest are from the truck convoy. Jed and DJ and Jed with Travis, his driver. Travis and his family raised over $5,000 for Make-A-Wish this year and made 5th place! Thanks to the whole Hake clan, Travis and Cindy you guys are amazing...thanks so much.

Great day. Love, Jed and Kristin

Whoo, busy day! We went to the Fairie Festival, took Grace with us and ran into Megan and Jase with some friends. Jed was not really impressed with the whole "Fairie thing". It was pretty cool, great music...lots of "Fairie" people. These people are REALLY into it. I don't know, 60 year old men dressed as wood fairies, and mythical creatures is just a bit weird for me. It was cool to do something different. Oh, and when we parked to go in, the guy in the car next to us started talking to Jed about his THON hat. Turns out his son was treated years ago and is doing great now, married with a kid! When he mentioned his son's name I knew I had heard it before. His son, Buddy, was in the waiting room at clinic one time and Dan gave him a whole stack of guitar magazines...this was like at least 5 years ago. Weird that they parked right next to us when the parking lot was in 3 different fields! Hey Holly, where you there? We looked for you and Emily!
pictures below
This evening was Savannah's Mini-musical. It was good. They did songs from Jersey Boys. Of course it's much more fun when Savannah has a solo but it was still good. Jed and I sat in a row with only 1 other person in it and it turned out to be Jared's mom. Jared's family is a Four Diamonds family. He lost his sister, Jen, recently, she would have been a senior this year. I know I have talked about him before...we just love him. He went to THON with us. It was great to meet his mom. Jed was chatting with her and loved the fact that she new exactly what he was talking about. They are just a very nice family, too bad the reason we are getting to know each other is because of such crappy circumstances. Anyway, it was great to meet her.
Jed is upstairs, I hope he goes to sleep soon, big day tomorrow...
TRUCK CONVOY! DJ is going along. Tomorrow is also Savannah's birthday 17, holy moly.
Bed time, Love Jed and Kristin

Oh, Fairie Friends!!!!!!!

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Jase, Megan, Tori, Willow, Grace and JED!

A Fairie that does card tricks?

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Jed partying with the Fairies

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Hi, Jed had blood counts today..they were good, so now unless something weird happens we are off until the 13th! Not 1 trip to Hershey is planned until then..amazing! On the 13th we should be in for 4 days or so. Jed went right down to Grace's to play with Jase. He will be home later. Tomorrow I want him to go to the Fairy Festival with me...we'll see! I think he is hoping it rains! Tomorrow night Savannah has a show choir performance and Sunday is the truck convoy and Savannah's Birthday...I guess I already said all this..so anyway, alls well here. So that's it. Love Jed and Kristin