Tuesday, January 27, 2009

Hey all. Everything is ok here. Jed is very tired but is better than he was last night. He is pretty pale though. He and Hop went out for lunch today and we were opted out at work, something broke on the line and they shut it down. WhooHoo home by 11:45am....I had my PJ's on before 12....sad I know but I was so happy!
It is kind of snowy here and tonight it is supposed to snow more & get icy. Oh yeah.
Savannah has painted her room and ripped up the carpet.....her floor is a mess of pieced together and uneven flooring but I think it will be better for her allergies without the old yucky carpet. Jared helped her rip it up and drag it out last night. The only problem now is that it is 10x louder in our room and 20x louder in Jed's room! she is going to get some throw rugs, hopefully that will help. I guess that means she is staying home for her 1st year of college!
Jed and Danny are eating steak right now...surprise! Savannah is off to work, hope she gets home before the ice starts. That's really about all the news. Just working and all that fun stuff! It's really not that bad at all I am just not very happy to be away from Jed. he seems ok though and he does like to keep me in his room at night until he goes to sleep,,,, Sunday night it was 12:30am and Monday night it was almost 1am.......good thing I am used to running on just a little sleep! caffeine and frantic energy get me far!
Biggest loser night....wish I had cake! uummm cake...that is so pathetic! I guess I better get on the treadmill instead.
Love J & K

Saturday, January 24, 2009

Hi. everything is calm here, I almost hate to say that..don't wanna jinx it! Anyway, Jed has done very well hanging with Hop and Grace the past 2 days. He made cookies with Grace and the next day they all had "brunch" and Hop took him to pick up a game he had ordered. Today he might go to see his little brother and sister..not sure yet.
We had our meeting at work about lay-offs. Our plant is going to lose over 300 hundred jobs. A small percent is salaried but of course the bulk of it is hourly (me). Between Mom, Danny and I, I have the least seniority so I would be the 1st of us to go. I have 884 people under me so as of now I am safe.....we will see what happens. I really can't worry about it because I can't do anything about it. I most likely will end up on 3rd shift after all the moving around has been finished....oh well. I am selling my motorcycle though. It's stupid and kind of selfish to keep it. One less monthly payment. but only if my Uncle Jack buys it. I guess that's about it. Work is ok, my team is being kind and putting me on a job where I am not in the way or holding them up instead of putting me back into rotation....I would be a drag on the group besides it would probably kill me! It is SOOO incredibly loud in that place. I had forgotten.
Savannah is feeling better, she's back at school. She told her Nana that she was considering staying home for her 1st year of college and Nana cried.....from happiness! So we will see. Did I tell you before that Penn State York offered her 1,300 every semester if she goes there? Every little bit helps and since I go at night she won't have to worry about running into me! I won't be back until next January anyway.
This weekend is a canning weekend so when you see the kids on the corners with their signs and cans......GIVE THEM YOUR CHANGE!!!!!!!!! THON will be here soon, next month!
Tha's about it. Take care
Love Jed and Kristin

Wednesday, January 21, 2009

THON 2009 - This We Believe

Watch it over and over, look for us. Our group is wearing lime green. We are in there a few times...look hard!!!!



Hi. Here is a picture of Jed's 1st hair cut in almost 2 years. I am the only one that has ever cut his hair but I just couldn't bring myself to do it this time. Alecia stepped in and rescued Jed from his fuzzy mullet. The after pic is a little weird but it really does look good. She cut off most of the fuzzy chemo hair. His hair won't be normal for a long time but at least he looks less "sick" now.
He is feeling good. Dad will be here at 6am tomorrow so I can head off to work....hi ho hi ho. Jed is funny about it because he says "yeah, no problem, I know mom needs to go to work I'll be fine" Then he says "it's only 10 days right?" Yes, only 10 days...this time. Hopefully by the time I have to go back forever he will be so ready to get rid of me!
ok gotta go find all my work crap.
Love Jed and Kristin

Tuesday, January 20, 2009

Hey. Clinic today. Jed is well. He had counts, they are pretty good. He also had his inhaled antibiotic then Hop took us to lunch. Grace and Jim met us there. We got home about 2 and have been watching the coverage of the inauguration. We missed the actual swearing in and the speech but I watched it on YouTube. If you haven't heard it, you should, it was awesome. I'm not religious but the old guy that gave the benediction...it was fantastic..look that one up too!
Ya know I think I would have had to skip if I was walking down Pennsylvania ave as the new president and 1st lady. I waited all day for someone to skip...I would have skipped. Now as I watch the parade there is a chubby girl in purple with a flag...and she skipped...finially. How could you not skip? It's a skipping kind of day!
OK, anyway off the skipping.. Savannah, the puke queen, is feeling a little better. She was texting me quotes as the swearing in was happening. She is now seriously considering staying home her 1st year of college and going to Penn State York or York College. Smart move money wise I think and she really wants to be in DC. So if she stays home she will be able to focus on making sure her GPA is good & she can go to American next year. She also can keep her job and not have the worry of trying to find a new one while getting settled in a new town, new school and being away all at the same time. What's holding her back from staying home is her ego, she doesn't want to be "the girl that stayed home". I think that's better than the bunch of kids that left their 1st year and are coming home for the next 3 yrs! So we shall see.
Well, I think Jed is ready for his steak now!!!!
Love Jed and Kristin

Monday, January 19, 2009

Hi All. Today was to be a busy day. Jed had a dentist appointment at 8am, then we had college friends coming to visit and then Jed has school at 4pm. Of course things never go as planned here. Savannah had dinner at a friends last night and called about 10:30 to say she was staying the night. She called again at 12:30 to say she was headed home and didn't feel well. She wasn't kidding! She ended up having a nice stomach virus and was up all night running up and down the stairs to the bathroom..poor thing. She is not used to being sick and has never done it well. She is better at it now. She was crying, and puking. I felt bad, it sucks to be that sick. Being the nut I am, every time she left the bathroom I ran in and sprayed everything with cleaning spray! The thought of Jed getting it or Danny stresses me out! If I get it I just hope it is after Tuesday. I have never missed a clinic appointment, He sits on my lap to get his port accessed, I HAVE to be there, not an option to be sick! So she is finished with the horrible part, that's good, it only lasted for the night. Now she is texting me from the attic saying her belly hurts!
Jed had stomach pain all day. He was "starving" but didn't want to eat. He ate toast all day and then at 10:30pm decided he wanted mashed potatoes and a hot dog. (yup, I was peeling potatoes at 10:30). It made his stomach worse but he said he was so hungry he had to eat it. He had toast about 12am, his belly still hurt. He was up until 5am with this stomach pain. He has had such weird stomach issues since he got sick. Most of them we never figure out, they just come and go. He ate a bunch of Rolaids, took a pill he has to help with stomach spasms and had his heating pad. He just could not sleep, with the pain and with the sicky stomping up and down the stairs and hallway! It was an exciting night! I texted the college friends and told them to stay away from our toxic germ factory, I canceled Jed's dentist appointment...I can't remember when he was there last. I have been so afraid of an infection I wouldn't take him but he needs to go soon. I called his teacher, her son has a temp of 104, so no school! Jed will be sad...right.
Tomorrow is clinic. He has blood counts and his inhaled antibiotic, that's it. Maybe I will make it home to watch the swearing in of our new president....I can;t believe I might miss it, after all this! So exciting. I can finally take the magnet off the back of my car tomorrow...it has a W with a line through it..it's been on there for almost 4 yrs. Yea, can't wait to throw it away!!!!!
Jed did have a good Saturday. DJ was here for the afternooon. They played just about every video game in the house! Jed had a blast but he was so tired when D left he started crying..poor guy.
Ok, gotta go sicky needs water and Tylenol. Jed is still sleeping.
Love J & K

Tuesday, January 13, 2009

Hey. Jed is feeling better. He has been fighting a very lovely cold but it seems to be breaking up now.....thank goodness! Not much else new, just hanging around. Jed had school last night and today Grace took us to lunch...very nice of her. It is getting very cold.... Jed and I don't like that. I have to go to work on the 22nd. Oh my, going to work is not really stressful but getting all the paperwork together to be released to work is a pain. I think my dad will come here every morning at 6am and then get Jed up at 9 or so and take him to Grace's....as long as he is feeling ok. I know he will be fine but I will feel much better when I get my 10 days of work in and can again be home with him. I can do that until July then I have to go back full time. He should be almost finished with treatment by then and feeling ok..........that's what we hope. I am working with our social worker and Jed's teacher to figure out if he should go back to school soon or stay out the rest of the year. I would be perfectly fine with him being out until 6th grade starts. With tutoring all summer, of course. We have to see what the school district can and will do. I just don't think the stress Jed will feel is worth getting him back into school right now. Did I talk about all this before? My brain is melting but I am getting on my treadmill everyday whoo hoo. Today I have only been on for 30 mins so far. I feel kinda crappy (sore throat....Jed's cold) but maybe I will get back on tonight...it's biggest loser night. All the other days though I have been doing 4-6 miles a day. When Friday gets here if I have not lost any weight I am going to scream. Danny said for every mile I walk he is going to eat a cupcake....dork, of course he has lost 4lbs this week...by doing NOTHING! Jed walks on it about 15 mins a day or so, mainly he just plays with the incline thing! Gotta go make Jed a steak....... yuck
Love Jed and Kristin

Thursday, January 8, 2009

OMG, you are such a chuckle Jed!


OMG, you are such a chuckle Jed!
Originally uploaded by buckley04@verizon.net

No, really Jed, I am the cutest grandkid


No, really Jed, I am the cutest grandkid
Originally uploaded by buckley04@verizon.net

Hi. Jed is starting to feel better. his back is still hurting and he is tired but compared to a few days ago he is golden. The treadmill came yesterday. Savannah and I drug it inside and assembled it....we don't need no stinkin' boys! Jed used it for a few minutes last night and did 15 mins today. Savannah ran last night and today. I got 3 miles in...walking, not running! I will run one of these days!
we babysat Livi for a couple of hours today. She is funny...what a nut. We taught her important things,,,,how to lick the window and what time the Simpsons come on....stuff you gotta know.
Ok, that's it. We are having lunch with Mommo tomorrow, she is taking a mental health day!
Love
J & K new pic link on the right

Tuesday, January 6, 2009

Hiya. Jed had clinic today and his counts have made a remarkable recovery..yea!!!! so that means he starts his at home chemo meds today and we get to skip a week of clinic! He is feeling much better....he is his regular tired and achy but he is acting MUCH better. This round of steroids was one of the worst yet. But it's finished so we are moving on. Last night at midnight I was making hot dogs, at 1am he called me in to sit with him and at 2am the dog started barking like a nut. Thank goodness I've adapted (by force) to not much sleep. Ok, gotta go, the new biggest loser is starting...i am so hungry!
Yeah to the end of a challenging week! Jed is such a trooper, I whine and complain for him.

Thanks to all for the pep talks and emails.
Love J & K

Saturday, January 3, 2009

Hi. So Jed is melting down right now. Steroids started on Wednesday & they have been kicking in. He is hurting all over, very itchy, moody, he does things over and over and over because nothing is right...very ocd and then he cries and cries when he can't make things turn out how he wants them to. I try to be patient with him and do whatever he wants but aaahhhh he drives me crazy! Of course that makes me feel bad because he can't help it. Can't wait for this to be over.
Ok so the New Years eve story: Danny Jed and I were home watching the ball drop in NYC, signing Katy perry...etc. Savannah was at a friends house with a few other girls. She calls me at 12:30am...I thought to wish me a happy new year but she said " I need a favor" and then something about kids, a different party, police......"they have no where to go can she bring them here?" of course I said yes. When I told Danny what was going on he said "did you ask how many" uumm...no,"did you ask what was happening" uuumm ...no. Then he said "oookkaayy, good luck" I said "my mother always let everyone come to our house when anyone needed a place to stay and what kind of parent would say no to kids that have no where to go"? About a half hour later Savannah comes running up the stairs saying " I have to go make room, thanks so much". We closed our door and then we heard them all start to come upstairs.....they just kept coming and coming. We started cracking up because we just could not believe what we were hearing. I told Savannah everyone had to just find a spot and go to bed. Well in the LARGE group she "rescued" were a few drunk teenage boys...yuck. They were up and down the stairs constantly, they kept coming in our room looking for the bathroom, I heard Jed say about 20 times, "dude, the bathroom is down the hall". I told everyone, "ok, that's enough, go to sleep or just be quiet". By this time it was about 3am. There is always 1 ass in the group & we got one...a drunk one. This kid came in our room at least 3 times and into Jed's quite a few. He was wandering up and down the stairs, in and out of the house and then I heard him ask someone in the attic if he could open the window to smoke a cigarette. I said "If you light that your going to eat it". Again I told everyone to shut up and go to sleep and again the stupid drunk kid wandered downstairs and outside, back in and to the bathroom. He missed the toilet..nice. Savannah had given me his keys earlier. One of his friends told me "he is just acting stupid I don't think he's really drunk". I told the big dumb kid to call a parent to come get him because I wanted him out. The kid said to me "what's your problem?"! Nice. He finally called his dad, told him that he was at someone else's house and that the mother was flipping out. The dad said he was not coming to pick him up and that I was to give the kid his keys back so he could drive home! I was so livid I did a stupid thing and gave the kid his keys, I just wanted him out. I should have told the dad "come get him or the police will bring him home". So after going in and out of the house 2 more times looking for his coat. and asking me for the keys I had already given him .he took someone elses coat and he and a stupid friend finally left. I found out later he couldn't find his car so he ended up walking to someone else's house that he knew. I thought for sure that it would settle down after they were gone but there was 1 stupid chic up there that kept giggling.....the rooms up stairs are right over ours and Jed's so we heard every thump, giggle and cuss word. Finally 2 more kids left and after a couple text messages to Savannah threatening bodily harm to them they shut up. I found out later that there was at least 17 kids in the attic!!!!!! No wonder it was so loud. I hate drunk boys.......yuck...stupid and stinky. What kind of parent doesn't come pick up a kid that says they need a ride because another parent has taken their keys????? I know I really should have never given him his keys back no matter what, that was very stupid of me, I just wanted him out of my house and away from Jed. Anyway so it started to get quiet around 4:30am and Jed was still awake, he had slept until 4pm the day before so he had slept all day...but still, he was crying and his back hurt from the spinal tap and the steroids. I laid down with him waiting for his meds to work and for him to fall asleep. I fell into a total deep sleep for about 10 minutes and I must have had a weird dream, because I woke up and looked at Jed, he looked grey and I started to panic, I just grabbed him by the shoulders and shook him, yelling his name....yes I am a total nut case. He gave me a funny, crooked smile and didn't even wake up! Of course after that there was NO sleeping for me! I stared at him and took his pulse every 5 minutes until about 7:30am and then I felt safe enough to leave him alone and go to bed. Then my mom called! My gram needed us to help get her Jack settled in his rehab. he was upset and had no phone and they wouldn't give gram any info because they are not married.....just a total mess. We drove to Baltimore and after a phone call to Jack's daughter who is vacationing in FLA, & a visit to the old people rehab, mom got it all straightened out. We went and saw gram, then came home about 2:30-3pm. Jed was still sleeping, all the teenagers were gone and I slept for a few hours! It was a nutty night! Now I know, when Savannah wants to rescue people..ask how many and are they drunk! I don't think Savannah knew what she had gotten herself into. She learned.and she cleaned the bathroom.
Danny Jed and I saw The day the earth stood still last night. Jed just barely made it though. He slept most of the day and was asleep about an hour after getting home from the movies. He is so wiped out. The doc wants him to start back to school after the holiday but he just can't do it and I just can't make him. I don't know what I am going to do about that.
Well I think that's it for now. Today was a quiet day. Danny rode his bike for a while...trying out his new heated gloves and then buying himself a heated jacket liner! Grace and I walked and Savannah worked. Danny made tacos for Savannah, Newman (Katie) and Grace! He has been cooking more lately, grilling stuff and cleaning the kitchen....whoohoo. Jed slept, woke up to explain his new remote control hummer to Grace and then had a total meltdown when I mentioned his homework. He went back to bed, cried and cried, ate and cried more. he is just so sad to watch. I want this to be over. I can't even imagine how he is feeling, I feel so bad for him. I am more stressed now then ever before. I want to be positive but all I think about is relapse, and the effects of all the meds. I am driving myself crazy. My treadmill comes on Monday maybe I can run away from it all! Yes the girl that is not working and has no money bought herself a treadmill! Oh well what's one more stress and maybe this one will help ease the other stress! We shall see. Of course then I feel stupid for stressing out when Jed is the one sick..he has to be more stressed than anyone!
So as of right now, Savannah is on her way home, Jed is asleep and I finally finished mom's Christmas gift......yes I know it is Jan3rd hey it's only 9 days late~ and it looks pretty good. I'll put a pic of it up when I give it to her! I have to go eat something bad for me because the official "new year" starts Monday for Danny and I....no more crappy food...:( I wonder how long we will last?!
Ok, end of long story!
Love Jed and Kristin

Thursday, January 1, 2009

Hey. just a quick note PLEASE go to http://www.thepetitionsite.com/1/CureChildhoodCancer and sign this petition to increase funding for childhood cancer research........thank you!
Also while you are doing this PLEASE go to http://change.gov/page/content/openforquestions20081229/
register & search for childhood cancer, its now on page 2 of the results since it was the first one submitted Please vote for our question. Childhood cancer is the #1 killer disease of our kids: 46 are diagnosed & 7 die each day. Additional funding is needed for research into better treatment options. Will you include funding in your budget to prioritize research to save our kids?
Let's get it in the top spot. Tell everyone you know to vote for it.YOU DON'T HAVE TO COPY AND PASTE THE SAME QUESTION. Because of duplicate postings last time, we lost out being in the top ten! We can do it this time.
just click on the check mark to vote for this question. THANK YOU ALL SO MUCH FOR TAKING THE TIME TO DO THIS. Did you know that only 3% of government funding goes for childhood cancer research?
Jed is ok, I have a New Year's eve story..of course! I will tell ya'll tomorrow...Nuts!
Love Jed and Kristin Gotta go watch PSU get whupped :(