Wednesday, May 27, 2009


Danny and the Mac!



Jed, Livi-Mac and Dan

hey. Jed is suffering from a lovely spinal headache. He has only really had one severe one of these before, a few minor ones but this one seems to be on the more severe side. He starts to feel ok and gets up to do stuff and then of course as soon as he is not flat on his back the headache returns with a vengeance. Hopefully it will go away today. Savannah brought him some coke last night and that supposedly helps...I guess we just wait and see. He did well yesterday considering that "his" Holly was not there! Joanne took care of him. As of yesterday he has 20 weeks of chemo left...I might have mentioned that before. He also should only have 1 more spinal tap! I am not telling him any of this just in case something changes. I am slightly stressed that he is not on chemo right now but I have to trust that they know what they are doing. He should be able to start next week.



2 doses of steroids in, waiting to see if there is a reaction. Sometimes it is horrible, very OCD, very emotional other times he doesn't seem effected except he is hungry...and other times it all does not even start until the 5 days are over! It is a kind of hold your breath thing!



This weather is sucky...too cold. That is what's going on as of now. I had to call the teacher and postpone school until his headache is gone,...hate to do that!



Love Jed and Kristin

1 comment:

Anonymous said...

You're such a champ Jed. Congrats to everyone about the Mini-Thon. And sweet T-shirt Danny!

Miss you all!

-Christie