Hey. We are out of the PICU now we are in room 7220. His belly pain is gone but as of right now he still cannot eat or drink...this makes for a very miserable Jed. They took out the catheter thank god! He still has the central line in his leg. They were going to remove it but now his blood is not clotting. All these months of blood thinners and now he has the opposite problem! They are giving him plasma and vitamin K to help but it doesn't seem to be working yet. That's what's happening right now. He is just sooooo miserable! Poor Jed.
I just saw Pete and then Trish, they are Jackson's parents. Jackson is here just for clinic. He is heading in the right direction and doing well!
Gotta run. I'll write more later. Love Jed and Kristin