Hi. Nice day today and we are watching the Kid's Choice Awards right now! Jed went to his Dad's today for a few hours. He is feeling pretty good, looks good too.He was excited to see his little brother and sister. Danny and I rode this morning...I rode with him because it was too cold to ride a motorcycle alone! Turns out it was too cold to ride together too! I thought maybe if we just acted like we expected warm weather it would happen..well it didn't quite work out that way! It warmed up this afternoon but by then Danny, Savannah and I were out getting something to eat. We met Jed at Mom and Dad's, hung around long enough to help teach them how to shop for ringtones online! Hysterical, of course the guys loved the fart sounds! Who woulda thought they had "ringtones" that sounded like really gross farts....eeeuuu. We left before Dad decided which one he wanted.

Jed decided he had to have KFC tonight...oh man how bad is that stuff?! Of course only extra crispy will do! I am looking at him now on the couch which has a white cover on it and he is almost the same color as the couch! Did you ever see that movie with the bald kid that had special powers? I think it was called Powder. Anyway Jed looks just like that guy! So extra pale and he is getting tall and thin. I always thought it would be hard to find someone whiter than Savannah....Jed's got her beat!

That's it for our day. America's Most Wanted is on now...yes "redneck" Saturday night! Yes, Dave Dietz it's your night! Hey your wife said it not me! Ok time to go. Love Jed and Kristin

Howdy. Nothing happening here. Savannah is getting deep into preparations for Red Lion's mini thon. Jed is still sleeping. He is feeling ok, some stomach pain randomly but other than that all's well with him. No steak last night!!!! YEA!
Soon it will be time to go out and clean up all the neighbor's leaves from my flowers and put down new dirt and all that good stuff. I want to plant stuff but I have to make myself wait or it will all freeze.
The news said today is the 29th anniversary of the TMI accident. Oh my god I really am old! I remember when that happened. My parents were waiting to see if we were going to have to leave and I was appalled at the fact that we were leaving the horses behind! It's strange when I think of that because I was 9 and it seems so clear..weird, and I didn't have any idea of what was happening anyway. Ok, as you can tell there is not much going on here. I could do MORE laundry or clean or any number of things but I can't seem to motivate myself!
A note to Trish and Pete, thinking of you often, Jed and I are always so glad to read your comments..just to hear from you. And a note to our Gamma Phi friend
LV. Hang in there girl, your mom will be so proud when she realizes how much you have done for her lately. You are doing a fantastic job. Make sure you ask for help and get some sleep. Jed says to tell your mom "you can do this" and I am telling you "you can too". We love you and send you both strength and love. Call me ANYTIME. I guess that's it, now I guess I am forced to go do stuff. Yipee.
Love Jed and Kristin

Howdy. Nothing much happening. Hop came and stayed with Jed this morning while I went to the Dr. I have to keep going because work always wants more paper work. That doesn't add to the stress or anything..right?! Making and keeping an appointment is a pain in the a#!~! Anyway, then we went to lunch. The rest of today has just been laundry (me) and chillin'. Wednesday is always a hangover day. Post clinic hangover! Jed always feels crappy from the chemo and I always feel like I'm in a fog all day...well I know that's not unusual for me but it's worse on Wednesdays! I think of all the stuff I should be doing and I don't want to do anything! Jed just yelled down and said he wants steak... AGAIN tonight...guess I'm going BACK to the grocery store after Dan gets home..whoo hoo, I should buy stock in the Giant. I think I'll send Savannah...yea! I think that's it. Nice and calm here..
Love Jed and Kristin

Hi Everyone. A few hours ago I thought for sure I was going to be doing this update from the 7Th floor...but nope! Yeaaaa! We gave him all the nausea meds he could have and he still puked all day. He was either asleep or puking, not a fun day. All of a sudden around 4pm he had a fever, 20 minutes later it was gone! He felt horrible and wanted to stay in the hospital, thank goodness there were no rooms. His counts are great, he got all his chemo today, it was not a great day but he got all the chemo in. He felt a little better around 6pm and we headed home a little after that. This was only a 10 hour cl inc visit! Of course on the way home I had to stop at the grocery store and buy fillet and chicken and carrots and a cheese log with crackers! Wow I think his belly is better! He ate all the steak but thank goodness decided to wait till tomorrow for the chicken and the rest of his stash! OH what a day but hey, we are home and he is not puking right now so all is well. Biggest loser is on, great, I had 2 Hershey bars today! Not a good diet day. oh well.
We received the nicest cards from our Gamma Phi friend Liz. Thanks so much Liz, as for the super mom compliment thanks but I really feel more like slacker mom sometimes with all the just hanging around I have been doing! LV and LV's mommy, we are thinking of you both and send our love.
Love Jed and Kristin
Oh Jed was asked to be Best Man in the wedding of Travis and Cindy. Travis is our driver for the make-a-wish truck convoy! How cool! He said he thought and thought and could not come up with a better best man! He called last night and asked Jed and Jed said yes!

The guys at the ESPN Zone!

Hi. I hope everyone had a good holiday. Ours was good. We went to Mommo and Hop's for dinner yesterday. Lasagna..yum. Saturday Danny decided he wanted to take Jed to the ESPN Zone, so after Savannah was finished working we went to the harbor. The guys hung out and played at the ESPN Zone, Savannah and I shopped. We ended up at Urban Outfitters buying T-shirts! Savannah got 1 that says Obama for your Mama! Mine says, friends don't let friends vote republican! Anyway we had fun and then we went to Phillips for seafood. It was soo good. Jed sometimes has a hard time eating, he gets full or sick after just a bite or 2 so he didn't eat much but the rest of us did! Savannah noticed that the Body Works exhibit was at the Science Center so we went there to check it out. It was incredible. If you get a chance to see it you should. We even bought a big book about it so Mom and Dad could see it. Jed liked it but after awhile he got bored and tired! Danny had to walk all the way to the other side of the Harbor to get the car and come pick us up because Jed said he could not walk that far. We had a great day and of course when we got home I had to make garlic chicken and mashed potatoes and steamed carrots for Jed! It was fun and I just love being at the Harbor, of course I'd rather be in Fells Point but at least I was near the water! Of course we got Nothing done around here but..oh, well going somewhere is WAY better! The kids didn't even fight at all! I am amazed!

Back to clinic tomorrow. Jed has an all day chemo scheduled...if his counts are good enough. That's all for now, I have to get ready to go to the dentist...whoo the excitement!

Love Jed and Kristin

Hi, just had to show you all this. I have this calender hanging on the inside of the bathroom door. It's all pics of St. John where my brother was married. We got to spend 3 quick days there and it is where we all want to go again. I wrote "I am here" on the bottom and yesterday I noticed that Jed had added himself complete with a little stick figure! What a nut!

He woke up throwing up this morning, still feels yucky but he made sure he texted his sister to pick him up after school to go to Rita's for free icee day! I guess your never too pukey for Rita's!

I have started slowly cleaning out his room..VERY slowly! I went through his clothes yesterday and I am putting his dresser together tonight. There might be something going on with his room. Amy (DJ's mom) called and mentioned maybe doing a room make over kinda thing for him. Is that cool or what?! I am not saying anything to Jed about it right now because I don't know if that's gonna work out or not but we'll see . The idea was great and so nice of her to think of. Either way he'll get his room painted "Penn State Blue & White"!

I guess that's it for now. I am hungry and trying Desperately to stick to my diet. oh yipee. Just thought I'd through that little complaint in there, I feel better now that I've "shared"!

See ya, Love Jed and Kristin

The King on his Throne

Hey just had to tell you all this, Jed told me at 5 pm "I would like to eat at 6pm". He said he wanted me to know so I could start cooking at the correct time! He and Dan got involved racing on the Wii so Jed ran in and said " ah, just hold off on dinner right now we're racing". Yes king Jed. and I am embarrassed to say I just delivered a plate of steak, scallops, mashed potatoes and a dinner roll to him in his room. Yes I really did, smack me. I wonder if I am finished for the evening or if I'm still on call for the kitchen? I guess I have to ask the King. Oh my, I have created a monster! Love J & K

Hi everyone. We are home from clinic. He was scheduled for an all day chemo but last night and this morning he felt really horrible so Dr. Unger made a deal with him. Today he got the chemo drug that they just push in and next week he will get the all day drip. His counts are great, he has a white count of more than 5! That's not .5 like normal, that's a real whole 5! His ANC is 4,200! Wow! I hope it all stays that way until next week. Since we left clinic he seems to have made a miraculous recovery! We went to home depot and got paint for his room. The whole way around the room about 6ft high will be Penn State blue, the rest and the ceiling will be white. His design! He also wants a big Penn State logo painted on 1 wall. I need to try to find a stencil or something. He got a new dresser. I haven't put it together yet. Poor Jed, we started construction on part of the house that was going to be Jed's new room 2 summers ago but when Jed got sick everything stopped so he is going to stay in his old room but it has no closet. That room is a wreck. There is just stuff everywhere. So the plan is to empty it..to where I have no idea there is no room anywhere in this house! Paint it and then try to figure out some storage ideas. He has to be able to get to the stuff but it also has to have a place to be put away. I need one of those organization people from TV to come here! So this should be a real project. I'll keep you updated on how it's going. Maybe I'll start tonight and put up some "before" shots! There might be "after" shots in a year or so!
So anyway he is feeling much better, we had to stop and get...yup, steak and scallops again. Thank god they are on sale. He didn't want any scallops last night so Dan ate them (it was for his birthday anyway) but now he swears he yelled to me as I was going down the stairs to please save him some..right. He had a little meltdown after he ate his steak last night. He wanted me to go back to the store and get more..ha. So now he has them again and I am broke..again. He really needs to start craving mac n cheese and hot dogs or something.
Savannah is singing at the state capital today for show choir..lucky her! I think that's about it. I am sooo dreading this bedroom project!
Love Jed and Kristin

Hi, just a quick note. Danny's breakfast birthday and cake was great. DJ came over later yesterday, we went to The Hungry Parrot (yuck) it's a pizza buffet, the boys love it there! They came back here and played Wii and play station. Jed is worn out today. He barely made it through a run to the grocery store but he did manage to eat a steak! Ok, that's it. We are off to clinic tomorrow for a full day of chemo..poor guy. Love Jed and Kristin

Hi. all is calm, all is bright, ha ha anyway, everything is going well. Jed feels pretty good. Savannah is headed to the cast party, today was the last show for their musical. They did a good job. Jed even made it through the whole show! He loves his musicals! I think he is the only 10yr old boy that knows all the songs from Rent! So nothing else going on. Tomorrow we are having breakfast for Danny's birthday and then cake at Adam's..yea.
Hi to Amanda, Jed's teacher, she had back surgery. Get well quick! Hi also to LV and Lv's mommy. We are thinking of you and sending you good thoughts and love.
Gotta go, it's redneck Saturday night..cops and Americas Most Wanted!
Love Jed and Kristin

Hi! We are home....ooohhh , thank goodness. I am going to lie down with Vick's and nite-quil now! Jed is doing great, he feels good. Love Jed and Kristin

Yes we are still in the hospital....yipee. His levels today are .12, yup really. Today I was sure we were going home they even drew blood for a second count this afternoon...it came back the same as the morning one. Danny is here so I got to shower!!! That's always a good thing. Danny and Boy-wonder are doing their tandem power nap. We will try again tomorrow, he is being flooded with fluids and a recovery drug to get rid of this med so we'll see. Maybe
Love Jed and Kristin

Hi Ya. Today is Monday and guess what his levels are????? ready? ok .25, yes really, they are .25. I am ready to either vacuum him out or wring him out. Anything to get this crud out so we can go home. I had an appointment in York this morning at 10, ok before that, I am not whining just relating the story of my morning, anyway. Dan took off work this morning to come stay with Jed because Dad is sick and can't be on the floor (gives bugs to other kids) Danny got here around 7:30 am. I was ready to go, not because I am punctual but because I was still awake. We got everything squared away and I left to run home to get jeans with no holes. Jeans with holes are not good for appointments. Now I have to back up here and tell you all that I have been kinda sick for a few days...not whining, just informing. So anyway I haven't really slept and I feel like..you know. I drove home , changed my clothes and started to get back in the car when I remembered I forgot the papers I Needed for this appointment. Of course I get in the house and can't find them. I can't blame this on anyone but me..too bad. I search and search, there they are on the kitchen counter..who put them there??? I am now right on time for my appointment but I need a coke because I feel sick, McDonald's drive Thu, I guess I'm not that sick because I ordered a hash brown too. I am 2/3rds of the way there, crusin in my little car, when I hit this HUGE hole, the whole right front just like fell in this hole and then flew out at about 45 mph. Thank goodness I was slowing down for a traffic light. Ok, I pulled over, it's not flat but looks weird so I drove a little more, yes I did that and I do know better but.. I was late! I pulled over again after not going very far because it was starting to be really bad. I get out (at Dairy Queen, they can't even be nice enough to be open) and my tire is kinda off the rim and the rim looks weird. Nice. I can change this tire but it would take me hours. I called Dad, who is sick, by now I am starting to freak out..just a little. I can only get the phone tree for the court house no real person, that's where I have to be. Dad got to me in record time, I took his car and I flew to the city and of course had to park 3 blocks away. I remembered at the last minute that I have to leave my cell phone in the car. This makes me a little panicky. I am running, well not really, but walking quickly and I have no idea what time it is because I DON"T HAVE MY PHONE. I get to the guard and he scans my huge bag and asks what electronics I have in there. What? None. I left my phone in the car. He searches it and finds my camera...ok, so what. I get this speech about how I know better and I have to take this back to my car before I can come in the building...I Am Late..(I think). After trying to explain that I don't have time to run back he says sorry you can't come in. I offered him the camera as a gift. He then put it in the gun safe and lectured me on how I should follow rules better..yes by now I am crying, yup I did, I figured it was what he wanted and I didn't want to drag it out so I gave the tears and red runny nose and all. He told me to relax..... oh, my. He eventually let me go up...unreal! I had my appointment all went well not as stressful as I had thought, just exhausting. I got my camera back from the power trippin court house guard and got to the car and MY PHONE, the world did not melt down while my phone was in the car.. oh thank goodness. From here everything works out well except for the fact that Dad had to take my car to the dealer to get a new tire , the rim was ok....thanks for small favors! I met him there and drove back here to the bat cave. Danny will pay dad for my boo boo when he gets back..poor guy. That was my morning!...Yes, I'm still kinda sick but I am back here and all's good. He will get his chemo tomorrow and then we go home. Even if we had left today I would have had to drive back tomorrow so this is ok. Jed is having a little school right now...and maybe will eat something later..I hope. So that's all that's new. I guess when I was complaining about nothing happening I should have shut up! Gotta run, the bat cave calls...Love Jed and Kristin

Hi all. We are STILL in the hospital. He is doing ok, looks a lot perkier this afternoon (watching the race). We are waiting for his methotrexate levels to come down. This seems to be a reoccurring theme in Jed's treatment. He is special ..he's a "slow secreter"...yuck does that sound gross or what! But that's my boy, slow secreter and all. His level has to be less than .1 for us to leave. Friday it was 1.7, yesterday it was .75 so I naturally assumed (what's that phrase about assume?) anyway, today it is~~~~~.5 nice. So who knows how long we will be here. So I guess we just do what we always do..hang out. I don't have much to write about, mainly because nothing is happening up here. Danny has been back and forth providing comic relief, shower time ( for me, Jed refuses to shower here) and snacks. Other than that there is nothing...oh wait we went to the ER this morning for a chest xray..it's fine but at least we went somewhere.
Savannah had her musical opening last night. The Wizard of OZ, she is a munchkin and a tree, we go next Saturday to see her. She is just always off to here or there doing this and that, you know, any reason to drive! So that's all the news. Now I have to go back to the bat cave. Love Jed and Kristin

Howdy. Jed is feeling pretty good. Today was Bingo day so of course he was up and ready by 10am! After bingo he played air hockey with a girl named Riley, she's 6 and they live near Delta! (that's not far from us) she has a form of lymphoma. I ran into another family up here who's son Alex, had AML, he finished his treatment around August but has recently relapsed, they are looking for a donor match. What a nightmare. Yesterday I walked into the rotunda and it was full of Amish people and in the middle was Barbie. She lost her daughter last May to Aml, yesterday would have been her 14th birthday so Barbie and her family came to say thank you to everyone up here...so nice. Jed loves the fact that she is Amish and her name is Barbie!!!!!
Jed looks good so we can't complain, compared to what goes on up here Jed is doing VERY well. He is a little pukey but that's the fun of chemo. Right now he is having school. She brought a computer game so he let her in! The last couple of times the teachers tried to come they wanted to read, he cried and threw a fit saying he was too sick. Amazing, show up with a computer instead of a book and he feels well enough to check it out!!!
We hope to be out by the weekend.... :) That's about it. Love Jed and Kristin

Hi. Jed is sleeping..yea. He and Danny are doing their daily ritual..napping! He is ok as long as we keep him calm. He was up a good deal last night throwing up and coughing. The chemo will be finished around 11:30 tonight. gotta go, love Jed and Kristin

Hey, it's a go for chemo! We are in and getting settled. Room 7264. Gotta run, Love Jed ans Kristin

Howdy. Jed had a good weekend. Saturday he was up and dressed by 8:30 am! Now this is the kid that I sometimes have to wake at 5pm because he has been sleeping all day! He was excited for the day of cooking with his Uncle Adam. He was picked up, they shopped for all the stuff and then they cooked all day. It was all delicious. They sauteed shrimp, they breaded and fried shrimp and oysters, steamed oysters, made crab cakes, sauteed scallops and grilled steak. There was also all the side stuff. Big Feast! We ate about 6:30 and by 7 Jed was having a meltdown. He was soooo tired, all he wanted to do was go home and sleep. I had just finished eating so he and I left. Dan and Savannah stayed to eat cake and help clean up. I told Jed he saved me from at least another 1,000 calories by making me get up because I would have picked while I sat at the table even though I was full! Jed and I did get cake though, I ate mine in bed Saturday night! awesome food, I think dad liked his birthday dinner.
Sunday Jed and Dan went to the game store so Jed can do whatever it is he does with his games. Trades them and stuff like that! So he had new games to play Sunday evening. He fell asleep at 6:30 pm anyway! I think he was still recovering from Saturday. He had some problems sleeping last night (probably because he went to bed so early!) so I was in there hanging out a lot. He was up and dressed this morning again at about 9:30! He is now taking a nap! He has this yucky crappy cough and stuffy nose thing going on. Poor guy. Tomorrow we go to clinic, the plan is to be admitted for 3-4 days of chemo but I don't know if that's going to happen because of this cough and runny nose. But of course I still have to do all the laundry and pack and straighted up just in case we do stay. I guess I could just leave tomorrow with the dishes in the sink and the sheets in the washer and all the laundry on the floor but I won't. Danny and Savannah are so busy it would all be there when we got home anyway!
I think that is all that's going on in our extremely exciting lives. Whoo hoo! I'll let ya all know what happens tomorrow. Love Jed and Kristin