Howdy. Jed did well yesterday. No cytoxin but he did get his vincristine. That stuff sucks. When we get out of there we stop for food ( McDonald's) and he is asleep within 10 mins of eating his food. he even slept through me running into the store for milk. I got him in the house and he went back to sleep until 7:30. He woke up long enough for the biggest loser and was asleep again before 10:30. He has school tonight so he will have to get up soon and work on his homework. He didn't get much done since we spent the weekend in the hospital! I have to head back up to the bathroom, it would be nice to finish this VERY small room today!!!!!!
I still have hallway to paint.
Oh, did I mention that my Gram is all moved in and all pics hung etc...She was even headed to her 1st dinner in the dining room last night! Haven't gotten the report on the event though!
That's it for now. Tonight Savannah and I are headed back to Hershey for "Thank-a-THON", we call donors and thank them for their dedication to THON! I have never done this before and I have some issues with calling people so it should be interesting. I also have to make hotel reservation for Savannah, Mom and I for Savannah, GA. Did I tell you all that that is what Savannah wants to do for senior week? We are going in June for 5 days...pretty cool, road trip!
Gotta go,
Love Jed and Kristin

Hey. Quick update.....Jed is great today! he spent the day at Grace's playing outside with Jase and Jim and messing up Grace's new computer...way to go Jed! He stayed all day! He seems to have come away from his little visit to the 7th floor none the worse for wear. I, of course, am still trying to recover! I really can't explain how hard it was to be in there this time. I guess if we had had to stay longer I would have fallen into the groove but I was so edgy and anxious to get out, it was horrible. But anyway enough of that...we are out!!!
On a website named pac2 I wrote about THON and this is one of the comments I got back......very cool!
THON inspired a former Ohio State University student a few years ago. The OSU student was visiting a friend at Penn State and learned about THON. She thought, "Why can't we do that?" and came home and started "Buckeyethon." Feb 28th, our family attended our fourth Buckeyethon. OSU isn't nearly as successful as Penn State - but their hearts are fully in it. I'm SO PROUD of these kids! They have truly taken our children to heart. Our first year, they raised $30,000. This year, they raised nearly $90,000 and the money is still coming in. These college kids are the hope for the future. They're looking outside of their own worlds - and reaching out to our children. I hope that some year, some visiting student at OSU takes THON on to the next school... Penn State, we Buckeyes rarely say this, but "YOU ROCK!"

awesome right? Way to go PSU!
Love J & K

Guess where we are??? Home!!! YAY us. I gently persuaded Jed, telling him "don't worry you only have to make it through tonight, Sunday and Sunday night, & clinic will be open on Monday. If you have to come back Holly will be here to access you". Jed then told me that it already was Sunday. Oh....umm..good. After making sure he made me aware of how crazy I am he was all pumped up and ready to go. So hey, go me. I came home, put the dirty laundry in the washer, took a shower until I used all the hot water and then fell into bed without even combing my hair! I took a nice nap for about an hour and I feel kinda human again. It really is all about me.....but Jed feels pretty good too. He ate McDonald's on the way home and is now eating warmed up KFC....he is the chicken boy, fried chicken! We will go back to Hershey on Tuesday so they can do blood work and tell us his counts are too low for chemo, Dr. Miller, the on call Dr for us this weekend, was asking when he last had a bone marrow aspiration to check for leukemia cells, he hasn't had one since his 1st to confirm relapse. I had been wondering about that, kids from other hospitals being treated for the same thing seem to have them more frequently. We will talk about that on Tuesday also.
So that's all the exciting news here. Danny took all the chair pads apart that I did for Gram's chairs....nice guy. Now all I have to do is cover them AGAIN! They will be less puffy and should fit. mom is going back to Towson tomorrow to give the correct change of address to the post office and see if the missing dining room chair is still in the house....I would think it would have to be...where else could it have gone. Weird. She and dad are not allowed over here because they both have colds......eeuuuwww....germs.
Trish, just wanted you to know that if we had had to stay I was taking you up on the offer of making a cake so we could eat it! I am so glad to be out of there, it always seems that when you get in there if you don't get out within the first 48 hrs you are stuck for days...weeks... I would have freaked out! It's bad enough when you are expecting it or are still in the groove of being there but we have been lucky and have not had to go up for a long while.....let's get back to that!
Ok that's all. Thanks for all the messages.
Love Jed and Kristin

As of right now we are still in bat cave #7255. He is going to get more blood today and if he doesn't spike a fever we can go home...on the condition that even if he hits 99-100 we call and come right back in. The Dr is convinced that we will be in by Monday night, Jed is afraid to go because he thinks he will have to come right back...and get his port accessed AGAIN.....huge drama. So the plan is to give him more blood, the last bag did nothing, and see if we can convince him to leave after that. I think he will be fine until Tuesday when we have clinic again. But I guess ultimately it's up to him. I finished my book, need another, have eaten more in 2 days than I normally eat in a week and I remembered that....it sucks here. I also found out that the teenage girl Jed loved so much, he won here a care bear at bingo once, her name is Shawntae..i think that's how you spell it, well she passed away about a week ago. We had NO IDEA. I have not told him, I don't think I will. She was in the room across the hall and they used to pass notes back and forth! I think she was 17......She was so beautiful. My dad saw her at clinic one day and she had no hair but was so gorgeous he said to her " you are so beautiful, you don't need hair!" What a loss, she fought hard, 2 transplants......it so extremely SUCKS.
So that's all the fun news here, god, we couldn't get him to come in now I can't get him to leave! Maybe I will tell him I will call the cops to make him leave since he told me to call the cops to try to get him to go! oh the fun!!!
And the other stuff, my Gram Buckley is in the hospital, she is having mini strokes. My other Gram is in here new place but we seem to have lost a dining room chair between Towson and York...hhmmm oh and the seat cushions I recovered are too fat to fit back on the chairs...I have to take them apart oh and all the return address lables and change of address cards my mom had printed for gram are wrong......whooo hooo we are batting 1000! oh well, what are you gonna do right?!
None of you college kids better tell me anything about your exciting, fun filled spring breaks.....don't wanna hear it! oh but do have fun!
ok, hi to you Trish and Pete!!!!
Love J & K

Hi, so we got Gram all moved in yesterday. Then Adam, Tiersa and The Mac came to put up her new TV and Hop and Jed came to hang pictures and a mirror. Around 6pm were were all exhausted and ready to leave. I put my hand on Jed's forehead while talking to him and I knew we might have a problem. Hop took him home and by the time I got home Jed was taking his own temp and sobbing. His temp was 102. He had a full blown freak out attack. He refused to go anywhere, said I was not to call the Dr. blah blah,,,on and on. Of course I had to call and Dr. Miller said she wanted him in as a direct admit. Oh boy, huge screaming fit. He told me to call the police because he was not going to the hospital, he hated me and everyone else...he named everyone he could think of! He screamed and yelled for at least 45 mins. Finally I told him that either he got up and got in the car or I would call the police and because he had a Dr's order to go to the hospital that they would take him. He, not so nicely, got up and got in the car. He was better on the ride here and after all the trauma of getting accessed he went to sleep. he is now bugging everyone to start giving him his meds IV. He said it's the only good thing about being in the hospital!. Well, so that's what's up here. I heard a rumor that the weather was nice......hate that! If his fever does not return we should get out of here tomorrow I would think. God I hope so! I will keep you all posted.
Love J & K

Happy Birthday Hop!

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Originally uploaded by buckley04@verizon.net

The nuts of the family

Hey, Jed's cough seems to have calmed down. I think maybe it had something to do with all the fluid he was given at clinic for chemo....? Me worring for nothing right?! He is tired but he had school last night (under duress). He started to whole "oh woe is me" thing about an hour before Mrs. Washko was to get here. My mom came by to get me ( I had to put shelf liner in the cabinets of my gram's new apartment) he was very glad to see her. He showed her his new book about London. He was easily distracted talking about the trip we HOPE to take next year at this time.....dependent on many things $$$$ is a big one!. My parents took Savannah when she was 10 and Jed was to go also but was too sick. The plan is next March....cross your fingers...I think I am going this time!!!!! I have never been there. Anyway we distracted him and when his teacher got here he did well. I, of course, went with mom to do stuff at Gram's apartment, going back this evening and tomorrow we will be in Baltimore at 8am , the movers are coming. LONG day tomorrow!!!! As of tomorrow night she will be a resident of PA. I am so hoping this all works out well. I hope she likes it at her new place and the trauma of leaving her house of more than 50 yrs is not too hard to handle. I recovered the seats for her dining room chairs last night and the seat for her vanity and the stool she uses in her bedroom. Now I guess I am headed upstairs to .....yup.. paint. I'm getting there but it is hard to paint the hall and stairs with everyone going up and down all the time!
It's going to be 60 degrees this weekend..so glad I still have my motorcycle. Danny said to keep it as long as I can. Maybe I can squeak by until I return to work full time. we'll see but I still have it for now..yay.
Ok gotta go paint!
Love Jed and Kristin

Just came back from an emergency run to the store. Jed slept for awhile and woke up coughing..a lot. He needed more Vick's and Tylenol cold and Ramon....that's all he said he could eat..so that's what I got. oh and cinnamon bread for toast! I just hope the coughing doesn't get to the point where he is up all night and miserable. His buddy Forrest, at clinic, had pneumonia last week. he is better now but that is a scary thing, especially with these chemo kids.
It's just a cold, it's just a cold.....keep saying that!
He is upstairs eating his Ramon.... watching the biggest loser of course!
Love Jed and Kristin

Hi all. Yup the 3rd time was the charm, he got all his chemo today. I was glad, he wasn't too thrilled but we made sure he slept through most of it. As always the wonderful nurses made "king Jed" feel comfortable. We really do have the best nurses and Dr's and clinic staff anyone could ever have. It wasn't even a very long day, we got there at 8am (Hop was our driver again today) and were gone by 2:30...not bad. we came home and turned around to run out to Boarder's. He needed some new reading material. I am trying to push the reading because it will help his vocab, concentration and just about everything else! He is not the reader that the rest of us are....I hope to change that, he needs to be a better speller than I am! He is tired now and resting but no puking. hope it stays that way. He will feel bad about Thursday or so. Friday we are moving my Gram up here to her new place. Yea! Jed might have to stay with my dad, I don't know if he will be up for the very busy day.
I have been painting. I painted the hallway to the bathroom, the hallway to my room, the steps...I only have half of them painted..we have to walk on the other side! I am also painting the bathroom. It was bright yellow and Savannah said it did bad things to her skin tone and she couldn't put on makeup in there! So now it will be a light turquoise...very pretty..looks like the ocean. I wish I could put sand on the floor...ok, maybe not! Tomorrow I hope to finish the bathroom. The steps used to be what I call "old people blue" kinda dusty blue, it's ok but I am making them a shiny cobalt...I love it!...That's the excitement in my life! I wish I could do electric and plumbing and construction...oh man I would be ripping down walls! Oh and fixing the electric so Jed's TV and PS3 are not plugged into the bathroom! Maybe one day!
It's REALLY cold....yuck.
I am going to put a link up on the right. It is the TODAY show talking about THON..very cool. The kid's Aunt Mindy emailed me some pics, she comes EVERY year on Sunday, she is the only family member outside the 4 of us that has come every year! this year she got there a little later and waited forever for a parking space and then had to go all the way up to the nose bleed seats! In her pics I can really see how crowded it was!
I guess that's about all for now.
Love Jed and Kristin

So I'm not sure what's going on with this blog, I don't know if it's just me or if it is not loading for everyone..weird.
We will try again tomorrow for chemo. This is the 3rd try, maybe the charm? He slept all day today, woke up at 12 ate a half of pancake, half an egg and a slice of toast. He went back upstairs to watch TV and 15 mins later asked me to turn his light off as I walked by. He woke up again at 6:30...because Danny woke him up. He ate chicken stuff left over from my mom's yesterday. Now he is back in bed but not asleep. He needs to read but he says he finished his book....hmm, I will have to fix that and get him some more books! Reading is not his favorite thing but too bad!
Saturday Jed went to his dad's for a few hours and I painted...all day. Yesterday we went to my parents for my Dad's birthday dinner...we got to play with "the mac". She's pretty funny, crawling everywhere. Even Danny was down on the floor crawling around!
I have to go try to wash off some of this paint!
Love
J & K