Hey! Well as of today we are officially in "maintenance"! He had a spinal tap and his inhaled antibiotic today. Tonight he started his 5 days of steroids. Cross your fingers for an event free 5 days. It could go either way with this stuff! The good part is that he only has to take it 5 days every 10 weeks. So we shall see! We do not have to go to clinic next week, slight panic attack for me but Jed is thrilled!
Right now he is feeling kinda pukey from the methotrexate they put in his spinal fluid. Sometimes it effects him and sometimes it doesn't. We did have to make a stop at the Game store so he could spend the gift cards burning a hole in his pocket!
When we got to clinic they had a poster up saying Happy Birthday Jed and everyone came out to the hallway and sang Happy Birthday! Even Dr. Unger. It was so sweet. I almost got teary eyed...but I don't do that, anyway it was really very nice. They also gave him a Wal-Mart gift card. So very nice. Carol, his nurse in the OR, gave him these little sea shells she got in Mexico called angles wings!
So that's it for now, thanks again to eveyone that helped make his birthday so wonderful.
Love Jed and Kristin