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I made that hat!


Hi Ya'll. So trick or treat is over. It was fun. Adam, Tiersa and The Mac came up. Jase, Meg, Jer, Grace and Jim were here too!. Jed did not dress up but he did walk with Meg Jer and Jase for a little while. Jase declared after about 20 mins that " I am done with this". So they came back to the porch to hang out! It was crazy here! Dan said hi to everyone then retreated up stairs. I guess we all are just too much. Oh Well. We had more trick or treaters than I thought we would with the rain. The church across the street did their yearly thing of free hot dogs and hot cider...that is Jed's fave part of Halloween! I think the people hanging at my house took full advantage! It was great for me it was like having a mini party and I didn't have to supply the food!
The Mac was a cupcake!!! and Adam made tiersa an apron that said " I make cupcakes". Livi-mac even had a wooden spoon that she carried everywhere!!! Funny and so cute. Jase was " I am NOT a frog I am a turtle" and he was very cute. He was also completely thrilled to dig into the candy bowl...over and over and over! We all took full advantage of the candy bowl! What we do have left over I am sending to State College tomorrow so Savannah can give it to the kids up there. It has to get out of here!
Jed leaves tomorrow for State College. Pappaw is running in the THON 5K. Maybe next year I will run??? I don't know. We shall see.
So that's what's up here.
Next year we will do this all again but I have decided that the adults will have "beverages" to enjoy while the kids eat the candy!
Love
J & K

Hi, so no school today. The raking he helped with yesterday must have done him in. He also said his belly was burning. I tried most of the morning to get him up...he finally made it about 2pm. We carved some pumpkins, made turkey burgers, he walked on the treadmill for 5 mins and talked to Mommo who stopped by for a visit. Now he is in his room "resting". I have no idea how long it will take for him to build up any strength. I have to go to work in a month or so and there is no way he will be in school all day everyday by then. I have to figure out all the scheduling details so he is confident that someone can come get him right away if he feels bad. I don't want him to worry that he will be stuck there if he needs to come home. Think they will let me start work at 9:15 and end at 3? I wish, then I could be here while he gets ready for school and drop him off & be back to pick him up..well once he starts going all day. I hate the schedul stuff! I just want to be able to do it all myself. Oh well.
SOOO anyway. Tomorrow is trick or treat and Sunday Jed is going to State College with nana and Pappaw for the THON 5K.
So that's whats up here
Love Jed and Kristin

Hey. Jed made it to school today and will be going again in the morning. I think the change in meds is helping the acid in his stomach. Not much else new. he is getting a snack and then we are off to bed.
I found out today they are laying off approx 400 more people....I am around 450. Getting close. I guess no matter what is going on with Jed and school I have to go to work after Thanksgiving. I will just have to figure out how and where and who and when for his half days and such. I need to make sure I get in my 18 weeks before they get rid of me so I can collect unemployment. I know I should be planning and getting stuff in order, I should have been doing that for the past year I guess. I have no clue what I will do. I think mom and Danny are going to be ok, they have more seniority than me.
whatever happens I will figure it out!
Jed is well, Savannah is feeling better so it's all good.
Love Jed and Kristin

Hey ya'll. Jed is home again today. After a few emails back and forth his nurse decided to up his zantac dose and add previcid. He took his first dose last night. I figured I would give him another day for the burning in his stomach to ease up. The teacher will be here tonight though. Also there are so many kids out sick it freaks me out a little to send him in there. Ok, ok, there is one more thing.....at 6:30 this morning when I normally get up it was so gross out I made the executive decision that we should sleep in. So it was a combination of things that are keeping us home today. We do have to go get some pumpkins to carve for Saturday and we need candy. I have not gotten any candy yet because last year I got it early and ate an entire bag of little snickers before trick or treat day. This year I am trying to limit myself to just one day of indulgence instead of all week!
I did find a great way to lose 8 lbs over night....buy a new scale!!!!!!!!!!!!! Everyone is always complaining (Savannah) that our scale is not right. 8-10 lbs over and sometimes you can gain 5 lbs in a day on that one. So I broke down and bought a new scale. Well eureka, I have been trying forever to see a certain number (not saying what it was) well I got on the new scale and I fell right past it!! Whoohoo, maybe I will go buy another new scale, wonder if it would work again? Everyone is happy with the new scale....Jed of course does not care, he is 5'1" and weighs about 85lbs. I want to fatten him up but we also have to be careful as cancer kids have a tendency to be over weight later in life. So we definitely have to keep watch on how he eats. He had fish the other night and because he spends so much time with me he actually reads food labels. Unlike his sister who gets ticked when I tell her to read the label of what she is eating!
This weather is so gross, I want to go back to bed but I will feel too guilty. I guess I am headed to the treadmill. Me, the work-out goddess (joke) can run 8 mins of my 30 mins on the treadmill. It is sad how proud I am of my 8 mins. Oh, & I can't actually do the 8 mins all together!!! that is spread out over the 30. Maybe in a year I can run the whole 2 miles...I think not. did I already talk about all of this? I can't remember. My brain is fried. Yesterday Jed asked for a mug of dried cereal and a glass of milk. I put the cereal in the mug and pured the milk on top of it. When I handed it to him he looked at me like I was crazy...hello, I think wanting them separated is nuts. This morning I turned on the coffee maker and put a juice glass under it for the coffee to drip into. Cracked the glass. I could not find the salt half the day yesterday...I put it in the fridge. After we left my Dr. appointment yesterday the whole way home I was thinking about how I had to stop at CVS and pick up Jed's prescription...thought about it all the way to the driveway and into the kitchen. I even looked in my bag to get the prescription out...I never stopped to pick it up. These are just a few small examples of my daily confused life. Jed gets a huge kick out of it. Me, not so much. Thank goodness the kids are old enough that I can't really lose them anywhere.
Gotta go.
Love Jed and Kristin

Jed stayed until noon. We went to lunch and he was talking about staying all day tomorrow. I said no way, the last time he stayed all day it wore him out so much he was out for over a week. But that idea has hit the skids because now he is sick! I had to cancel the teacher tonight. No Halloween parade for us this evening. Hopefully he is just over tired and will be better in the morning. Knowing Jed he will suddenly feel terrific at 8pm when the parade starts! Oh well, no teacher, no parade!
i will keep you posted
Love Jed and Kristin

Jed is at school!!!!!!!!!!!!


Please no fluey kids near him!

Hi. Yesterday was a monsoon! I cannot believe how hard it rained. Jed ended up going to the movies with his father and their family. His big thing about the movies is the popcorn...he didn't get any yesterday so Danny is taking him back to the movies today, not to see a movie, just to get popcorn! Weird kid. When he came home he went right up and brought money down and asked me to call and order pizza! He was starving. Danny and I headed out yesterday with all intentions of going to the music festival, but when the sky opened up we went to Westgate for veggie subs instead! Then we came home and watched Penn State squish Mich., beautiful. The Althoff's decided not to go to camp...wise move! I think they would have floated away!
Savannah is on antibiotics, she has a double ear infection and a sinus infection. But she was at Central Market yesterday at 5:30am to can for THON. She said people were rude and another group ended up being there ( a mistake in the market manager's planning) so she had to split the $ in the spirit of THON! Today she is headed out to Rt 30 and George st. ( if she feels ok) Brent aka Crooked from Acacia will be at the intersection of Camp Betty Washington rd and Mt Rose ave. Even if you see someone that is not "ours" feel free to empty the change you collect in your car into their cans!
I guess that's it. I have no clue what I am doing today. I hope at some point to drive by and give Brent some cookies, maybe go visit my Gram, give her cookies too.
I made cookies during halftime yesterday. I completely blew my diet yesterday, between the veggie cheese subs with onion rings and then chocolate chip cookies, I pretty much canceled out all the hard work from the week before. Time to start over...:( Wish I could wake up 20 lbs lighter!!!!
Oh and can I just say, as I sit here and watch meet the press,Dick Cheney-SHUT UP.
ok thanks
That's all for now. Gotta get Jed up and feed him. He ate 1 piece of pizza from the one he ordered last night, I think he is thinner now than he has ever been. Looks like a little stick. He gets tired just from coming down the stairs. Wish my Gram B was still cooking, I'd take him to her, she can fatten up anyone!!!! Trust me!

OH Yeah...the big news, now that Jed is finished with treatment...ground breaking for the new free standing Hershey Medical Center Children's Hospital is happening on Nov. 13th! Jed and I are going to help hand out programs to the big wigs. Savannah said " They are making the cancer kids work? Shouldn't they be honored guests?!!!" We don't care though we are just happy it is finally happening...(now that we are finished). Better than never!
Love Jed and Kristin
Hi to our friends in Texas....Thomas and Lisa, SO glad you are home..

Hey all. So the little walk and scooter adventure Jed took with us did him in for 2 days! He was so sore and stiff he could hardly move. We all, including Jed, need to remember that it will be a VERY long time before he is back to normal. Actually we have no idea what Jed's "normal" is! Even that short walk was WAY too much. He is better today. He went with me to get my tattoo, and then he had school this evening.
I am in no hurry to send him back to school though. They have been averaging 4-6 kids out per day in his class due to illness. What is going to happen when it really gets cold and flu season is REALLY here? Anyway I am waiting until at least Monday to send him in.
Yesterday I pulled up all my tomatoes and peppers and stuff....so sad. I am not happy that winter is coming.

summer, beautiful and green..............................winter, cold, brown & gray
oh well, I can't change it I guess at some point I will have to just accept it...uugghh.
anyway, that's the excitement here at the Buckley-Smith-Slatton abode.
Saturday we are to go to the Althoff's camp, I am hoping for nice weather. Maybe the rain will just go away. There is a music festival we were going to go to but Jed really wants to go see the Althoffs at camp so that is where we are going. I like to go too.....smoores! YUM I have made it 4 days on weight watchers and I am thinking of smoores already! There is probably no hope for me!
Gram is doing well. She had in-home care for the 1st 24 hrs after she got home but insisted on being alone after that! But the fact that she lives in Country Meadows really makes things easier, all she has to do is ring her bell if she needs help. She said her dinner table is cursed, "3 people in the hospital and 1 person died". Well Gram the one that died was in her 90s and the rest are in their late 80s so I don't think the table is cursed I think the people are just old.....it is an old people home!!!! I know sounds cold but it's true!
Savannah is feeling a little better, she is at the homecoming parade tonight. I guess she is not going with her "boy" to his homecoming..I forgot to ask!
Ok, that's all for now
Love Jed and Kristin

Hi, just wanted to share this article....very important.
My son has cancer and cannot go to day care because of unvaccinated children.
http://www.slate.com/id/2232977/

Hey,
Home from clinic. Jed's counts are GREAT!!!! He is still really tired and stiff but hey, that's not too bad! We went to lunch and he ate half a huge burger and then he scootered with G and I while we walked ( a short walk). November 6th is the big day (another one) Jed gets his port out that day. One more step in Jed's new life!!! As soon as he is up to it he is headed back to school for a couple of hours a day.
My gram comes home from the hospital tonight. She just had a kidney out out Friday night, is 86 and she is coming home already!!! Amazing
Savannah is sick..yuck. Not the flu, just a head cold ...thank goodness.
That's all for now!
Love J & K

Hey all,
Everyone is doing well. Jed and Danny slept most of the day and then tonight Danny grilled steaks, chicken and veggies for us. Jed seems to be feeling pretty good. He ate a little bit.
Gram is doing well. she had her kidney taken out Friday night. After Jed and I got home from the hospital Savannah and I met Mom, Aunt Paula and Uncle Rick at York hospital to wait for Gram to come out of surgery. Saturday morning, when we went back, she was sitting in a chair and today she was up and walking. Now keep in mind this woman is 86 years old and they took her kidney out!!!! Amazing. She could be home by Tuesday or Wednesday.
Today I went to old Navy to get Jed some long sleeve shirts since it is FREEZING out side! I also got him some cargo pants lined with flannel. He is so skinny he gets cold quickly.
I guess that's it. I slept good last night but I am still tired, guess it will take me a couple of days to catch up. My throat hurts and I feel kinda yucky too. Hope it all is just from being tired.
Tuesday we have counts and I think we will make the appointment for Jed to get his port out....I want to throw up thinking about it. I want it out but , well I don't know, I guess it will be awhile before I wrap my head around the fact that we are finished treatment.
Talk to ya later,
Love Jed and Kristin

CANCER FREE LIFE STARTS TODAY...
we are outta here!!!
Thanks to EVERYONE for getting us through
Love J & K

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To go along with this sock puppet was a song about how smelling like feet makes life hard.....we need to get out now

Hey me again.
Did you ever get a gift that was so cool you were gonna hang it on your wall forever? You know, a gift you only get 1 of 1 time? Jed got that at his party from his PSU friends...a signed Sean Lee jersey (lineman for PSU). It was an awesome gift. Today Danny brought up a package that came in the mail from a PSU alum and great friend, in the package was....yup a signed Sean Lee jersey! Great minds think alike maybe?? K-rob..great gift! Jed was thrilled because we told him he couldn't wear the jersey, we would frame it and hang it in his Penn State room. Now he said since he has 2 he gets to wear one. Well, they are his so I guess it's only fair! Amazing....thanks everyone! He also got an awesome poster that we are gonna frame and put on his wall.
ok, that's my story!
Love Jed and Kristin

hi,
Today Jed's white count is .3.. it is headed up. Dr Frieberg said as soon as he hits .5 and has neutraphils we can go. He told Jed that if he got up and chased him down the hall yelling that he wants to go home then maybe it could be earlier. Jed didn't even open his eyes, he just shook his head no. Oh well!
I heard on the news that it might snow............that is not funny
Jed made a list the other day of things he wants to learn to do now that he is finished with chemo, one thing he wrote down is learning to snow board....oh geeze. Maybe if I learned too I wouldn't hate the winter so much! He also wants to learn how to ride a bike as he has never been able to yet. It's great that he has some goals. playing the drums and the sax are on the list too. I guess once he starts to feel better we will be very busy!
Right now though we just need to worry about getting out of here and doing whatever needs to be done with this tooth, jaw thing. He is still having pain in there so when we get out he needs to go to the dentist.
There is really not much else going on, same old stuff.
Love J & K

Hi. We are still here in the bat cave but Boy Wonder's counts have made a move up....very small but still in the right direction. His white count is .2 and his platelets have moved up also. Tomorrow if his white count is up more then we will be assured he is really recovering. Just need some neutraphils and then we will have an ANC. The only down side is that in order to make his counts come up they have increased his neupogen dose and that causes bone ache. Oh yipee. He is not feeling all that great, better in the evenings.
Late last night he filled out a menu for today. Instead of circling things he just wrote what he wanted. blueberry pancakes (blueberries on the inside not on top) and an egg and cheese biscuit. So this morning his breakfast show up and they really did make him blueberry pancakes with the berries on the inside! and they sent a biscuit, eggs and cheese! I was amazed. Of course he hasn't eaten any of it but I am saving the pancakes, maybe he will eat them for lunch! God only knows what he ordered for that meal.
I think that's about all the exciting news we have here. My Gram is to come home from the hospital today I think. Next week I need to be out of here to take her to consult with a doctor about her kidney. They said it must come out. Yuck. The hope is they can do it laproscopicly or however you spell that. anyway so that's what up.
i will keep you posted on all the drama from the bat cave. Talk to you tomorrow, same bat channel, same bat time...well maybe not time
Love J & K

Hey. same same same and more the same. Ok, well he did get the needle in his port changed. Amanda did it with no drama. I'd like to say it was the last time but if say that we might stay another week. They upped his neupogen dose, that's the stuff that helps boost his counts. Maybe the higher dosage will do the trick. The side effext of that is achy bones because it is making the bone marrow work but what are ya gonna do?
He had me run over to Fudruckers tonight after Danny got here. He got a burger, fries and onion rings. He ate about 2/3 of the burger and some fries. That is about all the news here. It has taken me forever to type this for some reason every word i type has many extra weird letters in it. Wonder if its lack of sleep??!!
ok, gotta go
love J & K

Hi, nothing really new here. Jed's counts seem to have gone down a little more but not too much. Again, I wanted to thank everyone for coming yesterday. To my family that traveled many hours ..thank you so much it means a lot to have all of you there. to the Hildebrand clan....we love you..always. G and J and your fam....thanks, your always there when needed. To our Hershey Med center friends...what would we do without you? Conley's...what can I say, there has never been a part of my life when you were not there! The Althoffs, new friends that have become so important. It's actually dangerous to be naming people because I am going to overlook someone...not intentionally...and feel very badly! I mentioned the Dietz's gang before.... :) awesome. Jed's very important Mazie Gable teachers and friends thank you for spending the day with us. Friends from work...so great that you came...thank you. Bobby from Chilis...Hi!!! Thanks so much for coming! Of course to all our Gamma Phi and Acacia crew....you guys really rock. To my fam, dad the loader and unloader and all around popcorn maker guy, mom the organizer and party thrower extraordinaire and Savannah...the go to girl ...thanks you guys did it all, as usual! well I know i missed people but those i missed please know it wasn't because your not important it's because my brain is fried. thanks again and again to everyone for a great day and the continued love and support.
Love J & K
P. S. Thanks to Danny..for always taking care of us....Love you

awesome party, thank you everyone for all the help and for showing up to celebrate Jed!
Mom dad savannah...thanks for all, G & J always so wonderful when you show up. Dietz gang....can't imagine doing any of these past years without you. Conley clan..you rock
Really thank you EVERYONE
any pics anyone has PLEASE send them to me! Hi ralph
Love J & K

The Dudes

The Dudes
Originally uploaded by buckley04@verizon.net

Jed's crew

Jed's crew
Originally uploaded by buckley04@verizon.net

Gamma Phi Acacia and Jed...and Savannah and Jared!!

SOOOO, hi all. I am back in the bat cave with boy wonder after a day of busy party stuff. I swear it just can't be easy right? My Gram went into the hospital last night with a bleeding cyst on her kidney so mom was with her ALL day. Savannah and I with some help from kourtney (home from college) rolled all the meat...just cracks me up to say that... sounds so gross! anyway it's all ready to be put out on the trays tomorrow, we picked up the popcorn maker, coffee urn, hot dog roller and a heater..which was for my Gram but she will not be there :( I have no idea how many are coming. Savannah thinks it's more than we averaged I think less...hope she wins! Danny will be back up here at 7am so I can head home again and get everything set up. I have to pick up balloons, cakes and ice then head to the park. This morning I was wishing I could just bag the whole thing. With Jed still in here and now my Gram in York hospital I just didn't want to but I think Jed will have fun so onward we go! Savannah has really taken the lead on this party. I gave my to do list to her and off she went! I just want Jed to have a good time. And all the drama is just part of anything we seem to do. Guess that's all for now. Of course there will be pics..many many pics!!! Oh please just let Jed have a good time....and all of you that are making the effort to come and help celebrate i hope it's fun for all of you too!
Fingers crossed
Love J & K

Hey. just wanted to say thanks to Trish and Pete for the Pizza Hut gift card!!! Gotta love the hospital delivery! His stomach has been hurting on and off all day but he is chowing down on his pizza rolls and bread sticks. My little pizza is good too,, now as my a@# expands I'm sure I will regret it but its good now!!! That was the absolute perfect birthday gift!!!
See you all Saturday!!!!
Love J & K

Hey all. Well here we are ..still in the bat cave. His counts are actually down today.....not by much but they are down. No fevers though. The antibiotic is kicking in and has messed up his stomach. It looks like my dad will come up tomorrow morning so I can run home and get stuff done for the party. Then on Saturday Danny is coming up early and I am going back to set up. Danny will bring him down around 12:30. I hope he is up to it. This sucks. I told him he is getting a pass to come to a THON picnic for PSU york. I am afraid he will give Danny crap and make it hard to get him here! It would be really nice if while I was doing party stuff tomorrow they discharged him and Dad brought him home. Well no matter what happens too late to stop now! Why can't we ever do anything the easy way? I guess I really have nothing to say...well I have a lot to say but it would be whining and some yelling of not nice words and just general oh poor us kind of stuff. SO why bother. I just want him to have a good time on Saturday. He doesn't have to run around and I am bringing my fold out chair from the beach so he can kick back and relax and still see all the action. Maybe we will bring a wheelchair with us from the hospital.
So much for my hopes of leaving today....why do I always do that??
Oh well, what cha gonna do...not a freaking thing...have to roll with it
Love J & K

Hi, Jed is still sleeping and of course since mommo brought his fave chicken casserole the antibiotics are upsetting his stomach. Good news though,,, his white count has jumped from .1 to.3!! whoo hoo. the Dr didn't get as excited though. I like Dr. Miller, when I say something she always looks startled and then really laughs hard! I think she thinks I'm nuts. Anyway she is conservative when it comes to letting you out of here and Dr Ungar is out of town. If Jed has an anc tomorrow and his pain has lessened I am lobbing hard to get out with oral antibiotics. A day at home before his party would be good. I think I am going to take my lounge chair and make it comfy so if he gets tired he can kick back on it and still enjoy everyone. I guess I should have postponed it but....oh well. It's on!!!! so that's what's up here at the bat cave. I want to take a shower! I'll get one sooner or later
Love J & K

Mommo just worked all day, then ran home made Jed's fave chicken casserole & drove the hour up so he would it here in case he wanted to eat. Fresh Boston Creams too. Now she is heading home again. Thanks Mommo Love you
Love J & K

HERE IT IS...AFTER 7 YEARS AND 4 MONTHS.
THE LAST CHEMO!!!!!!!!!!
We were supposed to be in clinic but Holly, Denise, Carol and Janiece came over with the poster! Holly broke the news to him. He didn't get it at first he still thought he had 5 weeks of at home meds!!! They finally convinced him that this is IT..ALL FINISHED!
It was so nice of all of them to come over. Tuesday is busy at clinic, I really thought they would not be able to make it!! They are the 4 main players on our team...well besides the Dr.
Now we just have to get this infection under control and figure out what to do with his tooth that hurts.
WOW, we made it... Thank you to all of you for the continued love and support. I hope to see EVERYONE reading this on Saturday!!!!!!
Love J & K

Dr. Ungar was just in. Jed's counts still suck but the Dr. said it's just an infection and we have to hang out until he makes enough neutraphils and white cells to fight it off. So not anything new to us. I am just getting antsy-er by the minute. I want out, want it to be over....NOW. I know Jed is at the end of what he can handle and I think am quickly approaching that point too. Let's go, let's get this finished..we have a party to go to.
Love J & K
PS still not thrilled that his white count is even LOWER today and his platelets have dropped from 79 to 68...VERY not cool

Hey. Everything is pretty much the same. His blood counts are up from critical to low thanks to the blood he got yesterday. Hi white counts has not moved yet though and he still has no neutrophils , which he needs to have an ANC. SOOOO we are waiting...ha sound familiar? That is the story of our lives up here. He is still having significant pain in his jaw where this tooth is loose and the new one is coming in. They have increased the frequency of his morphine dose and I asked them to just give it every 2 hrs instead of him asking for it when he wants it. This way it will stay in his system and he won't have such large peaks in his pain. Now we are just waiting for a white count to show up. He has not had a fever since very late Friday night (early Sat morn) and all his cultures so far have been negative. I think this antibiotic needs to be changed, but then what do I know! All I really know is that I want out of here and I know Jed does too. My hope is tomorrow's counts will show some improvement and they will send us home but I know better than that. He is sleeping now. Mom and Dad were here. They brought donuts and cranberry ginger ale...what a combo! Mom took my list of party "do's" and set off on making it all happen. Danny came up after they left. He headed home about an hour ago.
Gotta go,
Love J & K

Hey. So the CT showed no abscess..which is good. He got 2 bags of blood..he is much pinker now...his lips came back! The pain in his jaw is still pretty bad,,,waiting right now for an ok from the Dr. to give him an extra dose of IV morphine. Love weekend nights, everything takes 10 times longer to get approved and acted on. Denise our lovely friend and housekeeper extraordinaire brought me coffee on her way in for night shift. YAY..thanks Denise.
So we are just doing what we always do..hanging around. We REALLY need to get out. Tuesday is his last chemo and I want him to walk into clinic and see his sign. Oh god, what if we are still here by Saturday????? I am not going to think about that. This is slightly stressful. If we can get through tonight with no fevers and his blood counts show some improvement in the morning then i know it's all good and headed the right way. Of course there is always that little part that has to remember if his counts continue to drop....they can't go much lower..but if they do, then we are going to have to think about a bone marrow aspiration. I actually was thinking of it all week because he was so worn out and I'd feel much better with an all clear of his marrow. His blood has no sign of leukemia cells but I want to know his marrow is clean. Then there is the side of the argument that says an aspiration on a kid with no white count is not a good idea....just another place for an infection to start cooking. So that is basically where we are right now.....in limbo...again!
I will keep you posted on the drama up here in the bat cave. Danny was here for the afternoon and mom is coming up tomorrow so we are being entertained.
That's all for now
Love J & K

Hey all. Jed had a pretty good night. A couple of very low grade fevers and some jaw pain but we seemed to have gotten on top of that. His platelets have dropped over night and no one seems to know why. We are waiting for him to get some blood now and then he is having a CT scan at some point to look for an abscess in his jaw or gum line or something. His molars are coming in and that might be where the infection is.
I will keep you posted. He is sleeping soundly.
Love J & K

Hi all. So we are in the hospital! Yup, bat cave 7258. He had a fever this afternoon and because he has no white count we had to come in. He seems to have an infection where his 12 yr molars are coming in so his jaw is swollen. Kind of the same thing he had in July I think, but this is on the other side. It is SO hard to keep the end of treatment a secret up here! The one good thing about coming up is that I found out the envelope I mailed to the floor with all the invitations in it never made it here. None of the nurses know about his party. Savannah is printing up more and sending them up tomorrow with someone.
So anyway his fever has not returned and the hope is a few doses of antibiotics and we are out of here. I will be so sad if he does not get to go to clinic for his last chemo. I want him to walk in and see the sign that says "Jed's Last Chemo"!!!! now I am wondering if the people at the four diamonds got theirs. HMM, have to check that out.
ok, gotta go I'll keep you all posted.
Love J & K