Hey..Boy Wonder and I say Merry Christmas to all of you from here in the Bat Cave. I have to say it has been a rough few days . We got some very good news tonight though. They identified the fungus in Jed's lungs. Turns out this type responds better to a different anti-fungal that has barely any side effects so tonight was the last dose of the crud! YAY He will start the new med tomorrow. Can't be soon enough! He was almost comical tonight. To counter act the effects of the crud drug they gave him a few big doses of Demerol. He was so high tonight we was mumbling away then he would say stuff like, I caught that blue heron, the dinosaurs are here, hey look there's Pompeii, that guy owns a battle ship, you should sit on the porch and turn out the lights. Lots of fun! The sad part was he was moaning and shaking the whole time. The Demerol helps but does not take it away. It is exhausting. Danny was here tonight to help me when Jed said, very clearly and with much noise, I HAVE TO PEE. Now last night he said that and it was just he and I. I got him off the bed but he took 2 steps and couldn't see anything I was holding him up and trying to get him to the bathroom. He got right in the door and would not let go of the rail. He watered the whole bathroom! Then I couldn't get him out and back to bed and all cleaned up. I had to pull the cord in the bathroom! never did that before. Amanda came in, in all her calmness, and helped me get him cleaned up and back to bed. what fun that was! Tonight Danny was here though, still messy but WAY better than doing it alone! He is resting comfortably right now. He will be getting up to pee more than usual because he was given a diuretic. He has gained quite a few pounds of fluid weight the past few days. Today I could swear he was puffing up as I watched. I am hoping getting rid of some of this fluid will help him breath better and in turn help get rid of the headaches he is having. I think we have turned a corner....but then I always think that! i really feel that in the next few days he will start to feel better and in a week or so show some white cells. I am ready!
Mom Adam and Savannah were here today. Jed was awake, exhausted but awake. It was a good visit. Mom did my laundry again! Savannah gave me a framed copy of the only picture I have with Renee. It was sweet but god I look horrible! anyway she also gave me a print called Pete and The Bird Girl by an artist named James Dean...really. He paints his cat Pete in all kinds of places. When we were in Savannah, Ga I bought a print of Pete driving a yellow vw bug. I just love it..and I am not a cat person. Go to Petethecat.com..he is very cool!
Sooo anyway here we are, everything seems calm. Danny brought up a few of Jeds gifts but left the rest home. Everyone is waiting until we get home to open gifts. Mom brought Jed a tree the other day, did I mention this? Well too bad if I did. It is so cool everyone that comes in here is in love with it. It is completely decorated in blue and white with a penn state snowman on top! It's awesome.
THe Althoff's stopped by tonight with a bag of gifts for Jed and a gift card to ebay for me!!!!that was so way nice! Speaking of very nice, a girl I went to high school with came to the rotunda and brought me a bag with tea and cookies and honey, a bag of stuff for Jed and a card with money in it to help us out during this struggle! It was money donated by former classmates! I am so grateful and amazed.I know people are struggling and for them to help us is just so wonderful. Jed and I have always said, of course we would change all this if we could, but we cant so we have to take to good out and focus on that. The good is always the wonderful people we meet that help to get us through this. We have been and continue to be very lucky.
that's all for now, Merry Christmas to everyone..and ...always.......thanks for the love and support
Love Jed and Danny and Kristin and Savannah