Hey. Well the MRI was "clear of any abnormalities". That is good. The hope is the vision issues are med related and will clear up a bit as meds change. I really have no clue and it seems no one else knows either. He still can't see well. He holds his eyes wide open to try to see. He seemed better today over all though. He is on oxygen now..he hates it but is being very good about it. Jamie clipped off the little prongs so they don't go up in his nose. He disliked those very much. He is a bit more tolerant of it now that they are clipped. He was awake and talking today. Has a few fevers, we are still struggling with those. Changed some antibiotics around again. He got a ton of blood products today and he was very good when his nurse had to change the dressing because of the bleeding.
Geeze I must be very tired, I keep falling asleep while I am writing this!!!! But he just got lasics and will be peeing a lot soon. Can't sleep later because when he says mom I have to pee he means right now! He cannot stand up unassisted but he will try so I really must be awake! Ok, to wrap up before I nod off again, he looked better today, for a bit. With Jed though you never know what is going to happen the next day....or even in an hour! The main focus right now is to get rid of these fevers...that means he will be rid of his infection but his eyes really freak me out. Not even his eyes just he way he looks around like he is trying to see something specific. Hopefully we can work on that too. Poor guy, he is really brave.
Ok gotta go Love J & K