One more dose of crap finished. Today they pre-medicated him with Demerol. Then stopped the drug at the halfway point and gave him more demerol. He did start to shake about 15 mins after that but when he was given another dose the shaking slowed down and of course he threw up. We think the dose in the middle needs to be a little higher and that might fix the problem. Dr. Griener [sic], said that it seems people tend to acclimate to this drug and each dose could be easier. That would be great. The fact that his fever curve was noticeably better today, we are hoping, means that this drug is working, even with just one dose. Some of the nurses are starting to complain about the fact that he only has 1 line. With all these drugs they really have to shuffle to find the time to get them all in. I guess the broviac is in the not to distant future. Big John seems to have quieted the terror that subject brought to Jed. He still is not pleased and I know for a fact he is only going to let certain nurses do the dressing change but I can't see that that will be a hard thing to work around.
Right now though we need to curb the throwing up. It is from a combination of everything I think. Fever, fungus, drugs, you name it and it could be the issue. At this exact moment however we are working on trying to find where the blood in his vomit came from. God, that sounds gross. He threw up all his pm meds and there was blood too. I am thinking that everything has to be irritated, he's been heaving for days, worse today. I think the dr fellow guy is trying to work with the nurse to find time to run a bag of platelets. I also wanted the zantac IV but I'm assuming there would be a scheduling prob.
That is where things stand right now. Unless there is some huge miraculous recovery by Thurs. we will be here on Christmas. We will make it as good as we can and do the real thing whenever we get out!
I have been agonizing over this subject for awhile now, visitors. I know there are benefits to both, a fresh face to talk to when people come and less chance of catching something when they don't. As of right now I am going to have to go with playing it safe. I know many people want to see him over the holidays, and we want to see you, but I am asking that no one come until he has a white cell or two. I don't want anyone to be upset I just want him to get better as fast as he can without catching something. Also there is the fact that he feels horrible and would not be good company anyway! I hope you all understand that I am just trying to keep him as safe as possible. Thank you for your constant support and love.
Today looks a bit brighter than yesterday or even this morning. Small steps is what this is all about. Jed just seems to work on the 1 step forward and 3 steps back plan. But if that is what it takes then that is what we will do.
Again, thank you for all the help, love and support. We NEED you all and appreciate everything.
Love Jed and Kristin