Hi all. Well today was better..mostly. He was more awake and alert. He is stronger, still can't stand or walk on his own but getting better. He got some platelets and some packed red cells today. His counts are still dropping...they can't get too much lower so they have to start back up soon...well sort of soon! The new issue seems to be stomach pain. He had a little yesterday but today it is worse. They are testing him for C-diff. He is on so many antibiotics that they kill the good stuff in his intestines and then this always present bacteria take over. Still waiting for test results on that. He is also more nauseous than he had been previously. We put the phenergan back into play. He can get it now if he wants it. They had taken it away afraid that it was the reason for all the weirdness earlier. There flailing and such. Maybe it contributed to it, I really think it was a combination of his sever dehydration, lack of nutrients, tons of chemo and 4 different antibiotics. But now that he is getting enough fluids and nutrients I don't think the phenergan will be an issue. Besides if I had to choose between him not talking or him throwing up...well I would prob choose the not talking. Throwing up when you are so weak and you hurt is not fun. especially if you are throwing up nothing. But the not talking thing was pretty scary. Mommo was here today and did my laundry...no one stole it...bonus. My friend Becky was here. She was visiting family in Hunt Valley and drove all the way here to see me and bring me goodies! Thanks Beck. Danny came this eve. He had a busy day of getting the oil changed, new tires, other stuff on the car cleaned..filters and such. Then he made the mistake of looking into the drawers in the fridge....that started a cleaning project. Never look in there unless you really want to start a project. Well at least now the fridge is clean. He had a lovely story from his visit to jiffy lube that included a 4 year old pulling poop out of his pants and looking at it while hiding in a corner...gotta love it. Jed was pretty chatty today on and off. He just randomly jumps into a conversation. You have to always keep in mind that he is listening...even if he is drooling and snoring he will pop up and put his 2 sense in or even better, he will repeat a conversation you had when you thought he was sleeping..gotta watch that! The best part about that is in his drug induced fog he gets everything confused and then he argues with you when you try to correct him. I just go along with it.
I am so full again, glad most of the dinner brought up here is gone. I am making my self sick. I guess that's it.
Everyone send good thoughts and positive vibes to our friend, Thomas, in Texas, as he and his mom leave home tomorrow to move into a hospital far from family to get ready for his transplant. Nothing but success. Or as our friends the Althoff's say NEC, never ever quit.
Ok, nitey night all
Love Jed and Kristin